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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Why Does The Heat And The Sun Feel Like Fire!?
A MyLupusTeam Member asked a question 💭

I have a nice sitting are out back but even in the shade I feel like I could catch on fire at any moment and I am pretty sure I am not a vampire!

posted September 25, 2014
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A MyLupusTeam Member

That's normal for some of us I guess. For years, I had butterfly rashes on my face which get aggravated by sun exposure.

posted September 28, 2014
A MyLupusTeam Member

I don't "feel" it but I can burn like crazy in a very short time... Makes a person crazy.. I love the outdoors :)

posted September 26, 2014
A MyLupusTeam Member

I understand exactly what you are talking about. I always say I must be a vampire too! The sun is just NOT my friend. Hats, sunscreen, light jackets are what ive been told to keep on hand, but truthfully, for me that's just more crap to carry everywhere that doesn't work very well. My sun sensitivity - which affects my skin and eyes- had gotten so bad, I went to the eye doctor and that's when I found out I had glaucoma. I have to wear sunglasses in church because the lights give me a headache. I use a betamethasone dipropionate ointment for my skin.. It works pretty well- mention this for your skin to your doctor.

posted September 25, 2014
A MyLupusTeam Member

I get so hot I feel like I am standing in a oven. Lotions make me hotter I love it outside. The light In church hurt my eyes . I don't go to church I leave a sweat puddle wherever I sit. I have eye drops help a little I have pink eye again try to ware
makeup

posted January 21
A MyLupusTeam Member

I feel the same way. I don't get the rash everyone else gets but i will break out in hives. I also get seborrheic dermatitis in the same ares thebmapar rash would be. If the sun touches my skin it hurts like someone is holding it against an electric stove. Other than ecessive redness and swelling you wouldn't know looking at me. It is frustrating because it is everyday, sunscreen or no sunscreen.

posted September 19, 2016

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