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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Should I Expect While Trying To Get My Disability Benefits?

What Should I Expect While Trying To Get My Disability Benefits?

posted about 8 years ago
A MyLupusTeam Member said:

from what I have heard you will be denied several times and probably have to go to a hearing. Then the decision will take a few months. I hope you prevail and will be interested to see how it goes for you.

posted about 8 years ago
A MyLupusTeam Member said:

Before I got paralyzed, I filed a disability claim. Had an attorney but that didn't help much. With me, I was denied mainly because I was still working on my business 4 hours a day, even though I had a bed in my room in the office, where I would lie down too often when fatigue sinks in. They didn't care. They want you to be completely not working. Of course, as mentioned earlier, they deny most of the cases first. Good luck! (I have disability benefit now that they couldn't contest my disability anymore- wheelchair, catheter, how else could they deny?)

posted about 8 years ago
A MyLupusTeam Member said:

I go before judge in December,get an attorney,gateway is a government funded one.good luck.

posted about 8 years ago
A MyLupusTeam Member said:

My advice on getting disability is to find a lawyer in your state. Their fees are low and it comes out of the "back pay" that Social Security pays from the date of the disability claim to the date that the claim is settled or approved. It can take 3 years unfortunately.

There's a lot of forms to fill out and don't write that you can work "a little." It's important that you say you are undependable to work a regular schedule. Lupus flares are unpredictable, it's painful, fatigue is ever present, and that you just CANNOT WORK AT ALL. One more thing, brain fog is real - you can't work if you can't think clearly.

I was lucky - working for a company when I was diagnosed with Lupus and had disabity insurance. I got approved in two months because Lupus and other autoimmune diseases are an approved disability with Social Security. I got state disability and the insurance paid me the difference between what the state paid and 60% of my former work salary. Then the insurance (Liberty Life) helped me get Social Security Disability with the help of a lawyer.

The other lucky event was I was 64 when the process started. It may have been the reason I got approved by Social Security Disabilty in one year. Along with SS you get Medicare. It's a huge medical savings compared with commercial insurance.

posted 3 months ago
A MyLupusTeam Member said:

I’ve already been denied twice. My attorney says that I can appeal.but I can also work?? I’m completely confused and exhausted. I’ve been working since 14 and now I’m 51 . Lupus thrombosis 2 Tia fibromyalgia lesions on my brain and major depression disorders. But I’m denied???

posted 11 months ago
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