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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Cellcept

Cellcept

Who else uses Mycophenolate or the common brand cellcept? And how does it make you feel?

A MyLupusTeam Member said:

I use Mycophenolate Mofetil. I take 1,000mg in the morning and another 1,000mg at night. For the most part, it makes me feel tired and run down. It kind of functions like a low grade chemo drug, but without the nasty side effects. I haven't had and really bad reactions to it, but I have heard of others who have. I had to start taking it because 19 years of Medrol (prednisilone) use cause my hip joints to collapse. Had to get them both replaced. I started on Cytoxan first, but it was making me seriously anemic. Then my doctors switched me to CellCept. I've been on it for over a decade, and my Lupus has pretty much been in remission since.

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

I'm on plaquenil and cellcept. The cellcept upsets my stomach so but also take prilosect. I don't eat dairy and I'm on a gluten free diet. I'm not at 100% but I'm better than before.

edited, originally posted about 7 years ago
A MyLupusTeam Member said:

i lost 15 lbs after taking plaquenil but on the other hand i am also taking prednisone i was back to my normal weight, plaquenil normally takes 6 months to kick in your system.

edited, originally posted about 7 years ago
A MyLupusTeam Member said:

Pepcid. Darn you autocorrect.

posted over 7 years ago
A MyLupusTeam Member said:

Has done the trick for me and saving my kidneys

posted over 7 years ago
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