Who else uses Mycophenolate or the common brand cellcept? And how does it make you feel?
I use Mycophenolate Mofetil. I take 1,000mg in the morning and another 1,000mg at night. For the most part, it makes me feel tired and run down. It kind of functions like a low grade chemo drug, but without the nasty side effects. I haven't had and really bad reactions to it, but I have heard of others who have. I had to start taking it because 19 years of Medrol (prednisilone) use cause my hip joints to collapse. Had to get them both replaced. I started on Cytoxan first, but it was making me seriously anemic. Then my doctors switched me to CellCept. I've been on it for over a decade, and my Lupus has pretty much been in remission since.
I'm on plaquenil and cellcept. The cellcept upsets my stomach so but also take prilosect. I don't eat dairy and I'm on a gluten free diet. I'm not at 100% but I'm better than before.
i lost 15 lbs after taking plaquenil but on the other hand i am also taking prednisone i was back to my normal weight, plaquenil normally takes 6 months to kick in your system.
Has done the trick for me and saving my kidneys
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