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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Parents Want Me To Join A Support Group. Is Anyone Involved In Support Groups And Do You Find It Helpful At All?

My Parents Want Me To Join A Support Group. Is Anyone Involved In Support Groups And Do You Find It Helpful At All?

posted October 10, 2014
A MyLupusTeam Member

I just joined a support group and I love it. I've only been twice. We meet at the hospital once a month and so far we've talked about nutrition and meds. I also saw them at the walk. We are connected they are my sisters. Its fun and escape with people who understand me.

posted October 29, 2014
A MyLupusTeam Member

Even though I use online support, I will attend a support group in my town that meets every 2nd Sat in each month. Secondary to my belief in God, I need All the support I can get.

posted October 26, 2014
A MyLupusTeam Member

I go to UF and shands and I'm with the pediatric rheumatologist Dr. Mellisa Elder

posted October 22, 2014
A MyLupusTeam Member

@A MyLupusTeam Member I am actually on my way to get one done now but I've been getting the treatments for five months now. Started out as every two weeks then went down to every month and soon once every 9-12 weeks. It's working in my favor according to my doctors. My labs are improving with every treatment. I can't really tell a difference yet. They said it would take some time to really notice a difference. But I don't think it affects chances of fertility

posted October 22, 2014
A MyLupusTeam Member

Thank you Courtney! I actually travel to Gainesville to see my doctor and get my benlysta infusions every month

posted October 20, 2014

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