Connect with others who understand.

sign up log in
About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Taking Methothrexate?

Is Anyone Taking Methothrexate?

Is anyone taking Methotrexate? My new rheumy prescribed it, and after reading the information that comes with it, I'm afraid to take this. To go along with that Folic Acid. I would appreciate anyone sharing their experience with this. Good and Bad.

A MyLupusTeam Member said:

I am and I feel it was the key. That was the last medication added, and I've been steady ever since.

posted almost 6 years ago
A MyLupusTeam Member said:

I had concerns too, but understand it is pretty standard for RA and that made me feel a little more comfortable. I recently added it and, like jfelder, felt like it was a good fit right away. I've also been more stable, less flares, and have had better energy and less joint issues which has helped with increasing my exercise time. I also take generic plaquenil and topirimate daily, and have tried Benlysta beforehand, but it wasn't producing positive results (if at all) in proportion to its cost.

posted almost 6 years ago
A MyLupusTeam Member said:

methotrexate made a significant difference for me. Sometimes, I have to increase the dosage (per dr. orders) when I'm having a flare - but it does help! I do take folic acid and I lose little hair.

I take it on Saturdays - normally in the evening so I sleep it off because I feel icky when I take it - and my kids say I get grumpy - but it is worth it.

posted almost 6 years ago
A MyLupusTeam Member said:

I just started myself. I went with the minimal dose as a subcutaneous injection. My rhumi said it is more effective as an injection and there are fewer g.i. side effects. This is my second week and no negative impact so far.

posted almost 6 years ago
A MyLupusTeam Member said:

I’m just starting the Methotrexate. I was doing 400mg of Hydroxychloroquine daily for the last year and 1/2 but I was getting multiple side effects, foggy vision, ringing in my ears, shaking of my arms, hair loss, headaches. I hope this works . If not, I’m done. I’ll just learn to live with Lupus!✌️😎✌️

posted 9 months ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in