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What Do I Actually Have?

What Do I Actually Have?

WWhat do i actually have? I was told in the beginning it was skin lupus. Then was told i am having complications, said it is affecting my inside organs. What does sle mean, what is the skin deal is this all the same? Does one turn into another? I do not understand someone please help me understand

A MyLupusTeam Member said:

I dont have a job anymore tho, all i can do is go to the er an they fill u with pain meds an send u home. Ma says they wont do tests because i lack insurance. The express med here is $125 without insurance. But this sick feelin an pain that satrted 2 weeks ago still isnt gone. What else can u do? Waiting on paperwork and constantly cancelling appointments. Does anyone else have this problem? Or am i doing everythng wrong? How do u get help wen it seems like the only way to get help is out of reach, i jus want to not feel sick and to not hurt, but dont we all?

posted over 5 years ago
A MyLupusTeam Member said:

I would try the health clinic. Here in my town I was lucky and found a real good dr that listens to me. He is a little overly protective, but since I don't have anyone else looking out for me it's kind of nice.

posted over 5 years ago
A MyLupusTeam Member said:

Sweet join the club it's discord and systematic lupus affecting both other skin and organs. Very dangerous you must research both to understand what's happening to you. Keep a record of flare ups, and pain discomforts. Let you doctors know so they can treat everything properly.

posted over 5 years ago
A MyLupusTeam Member said:

Dear Eric you appear to be so song how old are you and when were you diagnosed. I am 76 and still can not figure out what type of Lupus I have. I was diagnosed in 2010, not to disappoint you, but I am in a lot of pain, take pain meds and then I am told to be careful or I will get addicted????? Keep asking your Rheumatologist all the questions you have until you get an answer.

posted over 1 year ago
A MyLupusTeam Member said:

Hi besides lupus I have Morphea Scleroderma it affects my skin and internal organs, I have a rash on my back and legs there is no cure just like lupus it goes on remission but it will come back, the rash is under my upper dermis it feels smoth to the touch but you can see it on my heap area and the back of my legs no very pretty, Morphea joint pain, your wrist will ache and I lost 50% of my lung capacity on my left lung hair loss etc...

posted over 5 years ago
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