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What's It Like Being Pregnant And Having Lupus?

What's It Like Being Pregnant And Having Lupus?

My husband and I have been debating about having children for a while now. I do have baby fever but I am also concerned about how my body is going to react to pregnancy ... Can anyone tell me some of their experiences being pregnant and having lupus ?

A MyLupusTeam Member said:

I had two children after my diagnosis, I was sent to a center for high risk pregnancy. The doctor I saw had delivered many babies to moms with sle. I had to have a c-section and spend five days in the hospital to make sure I would be ok. There were more sonograms and dr visits along the way but both were positive experiences for me. Good luck

posted about 7 years ago
A MyLupusTeam Member said:

In 1988 when I found out that I had (SLE)Lupus the doctors told me it would not be good for me to have anymore children. Because I was on a lot of medication, doctors running a lot of test.God has blessed me with 2 beautiful children, all grown up with their own families. So I took the doctor's advice and did not have anymore children. I had never heard of lupus back then. I had started researching about lupus.I stayed in the hospital for two weeks before I was diagnosis with lupus. I'm truly blessed because God has healed me. Just trust in God believe Him for your healing. I haven't taken any medication for lupus in years. I pray that this would encourage and help somebody. Be blessed!

posted over 6 years ago
A MyLupusTeam Member said:

I had difficulties with my pregnancy attempts, but that was 22 years ago. I hadn't been diagnosed before I started trying to get pregnant, I found out through a few miscarriages and lots of tests that I had SLE. Once we figured it out, they knew how to help me have a successful pregnancy. (My daughter turns 22 tomorrow) You have a lot of technology to help you these days, and you are ahead of the game by knowing that you have SLE. Take Miriams advice and find an OB that is knowledgeable. I wouldn't let it stop you, I wish you good luck!

posted about 7 years ago
A MyLupusTeam Member said:

I was pregnant during my first noticeably large flare. Before then any possible signs of lupus or flares were not noticed. I had terrible complications as I had no idea this was a disease that my body was trying to work through. I had morning sickness all day everyday (I took a high dose of ondansstron daily which can have side effects with pregnancy), I had cyatic nerve pain, Braxton hicks contractions, UTIs and bacterial infections, preeclampsia, low fetal movement (had to go for fetal monitoring 2xs/week for the last month of pregnancy), I couldn't sleep, I had nightmares a lot, and my poor baby boy went breech 2 days before his due date so we had to do an emergency c-section.

I know I have lupus bc of my labs and inflammatory issues and non-scaring discoid lesions, but my doctors and specialists are still working on coming to terms with a diagnosis.... All that being said, my little guy suffered from neonatal lupus. He had no heart issues other than a low heart rate at times (now he's fine), but he was born with sever eczema/skin rash and a Permiant singular subcutaneous discoid lesion on the apex of his skull.

I went through some of the worst pains in my life during that pregnancy. It was living through hell, but if you and your partner are strong enough... There's no time like the present. The younger you are the better the odds for you and baby.

posted about 7 years ago
A MyLupusTeam Member said:

Please talk to your rheumy ASAP! I don't think they would advise you getting off the plaquenil. Plaquenil is the ONLY drug that doesn't have proven adverse affects on pregnancy. In fact, all the literature I've read (and what my doctors have also told me) is that NOT being on the plaquenil, greatly increases your chances of flaring, which would harm your pregnancy without a doubt. The benefits of remaining on plaquenil far outweigh the risks. I too, am hoping to become pregnant in the next few months. I can tell you what I've heard, which is that it's different for every single person. That's what makes it so scary is going into this and not knowing if everything is going to go smoothly, or the other way.....it often worries me to think about as well. I just have to try to tell myself that NO ONE (lupus or not) can predict if they'll have a successful pregnancy, an easy one, a hard one....so I guess all we can do is try our best to ensure we're in the best health we can be when we do get pregnant, and just hope and pray for the best! Also, don't forget! You HAVE to be monitored more frequently (no matter how mild or severe your symptoms) because having lupus automatically places us in the "high risk" category. If anything, I see it as a good thing. We'll be monitored closely, and more frequently than an "average" pregnancy....So hopefully that will bring some peace of mind :-) Good luck to you and your husband!

edited, originally posted about 7 years ago
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