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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm Waiting For The Company To Send Me Benelsta, Does It Help, Any Suggesting A Before I Start? Do's And Fonts. Any Info Will Be Helpful :)

I'm Waiting For The Company To Send Me Benelsta, Does It Help, Any Suggesting A Before I Start? Do's And Fonts. Any Info Will Be Helpful :)

Any info will be helpful good or bad :)

A MyLupusTeam Member said:

1000 mg Tylenol, 125 mg benedryl, 40 mg solumedrol. Then get the benlysta.

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

I am awaiting insurance approval for benlysta. Im so glad I found this string. It makes me fell better about trying it. Has anyone noticed any weight gain or loss? I only ask because I keep losing weight and can't figure out why.

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

I have been on benlysta since January and I was scared too. I haven't experienced any side effects at all.. I receive the same pre med as @A MyLupusTeam Member..
All I feel after is tired.. Take a blanket and maybe get a nap in :)

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

If your insurance doesn't cover all the Benlysta infusion costs there is a group called the healthwell foundation you can contact and apply for help with the remainder. I did this and it's a blessing. I'm just now getting ready to start the infusions

edited, originally posted about 7 years ago
A MyLupusTeam Member said:

I am currently doing the benlysta infusions and have noticed a difference. It has helped with the mini strokes and works with the plaquenil on the rest of the lupus. Hope this helps

edited, originally posted over 7 years ago
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