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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Benlysta

Benlysta

Has anyone switched from cellcept to benlysta? Can you share your experience with me?

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

I'm on cellcept and benlysta. I just had my 3 loading dose last Thursday but my rheumy wants to keep me on cellcept for a few months until the benlysta kicks in. I had a mild reaction the first time I had a fever. The worst is the nausea. Expect to be tired the day of from the benadryl, the day after nausea, vomiting, I just spend the day in bed. You might not have an appetite I make smoothies that helps with the nausea too.

edited, originally posted about 7 years ago
A MyLupusTeam Member said:

I have never taken CellCept, but I was on Benlysta for over a year. I talked the Dr. into stopping the infusions because I didn't think they were helping that much. Actually, they were helping more than I realized. It was the only time I had any pain free days. Now, I have been off Benlysta for 5 months and I am ready to go back on it. My pain is severe. I think it was successful for me. Good luck and hopefully everything will go well for you.

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

I do benlysta once a month. Helps my skin,and brain fog. Skin started feeling better right away. Good luck to you. God bless

edited, originally posted over 7 years ago
A MyLupusTeam Member said:

Pain! My skin in certain areas feels like shingles. It hurts to touch. Plus the red spots everywhere. It helps a lot. I know when its time for treatment every month. Take care of yourself.

posted over 7 years ago
A MyLupusTeam Member said:

My doc is thinking of starting me on Benlysta soon:). Great info here.

edited, originally posted over 7 years ago
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