My eye swoll up for no reason about 5 years ago. My PCP referred me to a rheumatologist after positive ANA test. My blood test were slightly elevate but I didn't have any symptoms at the time. I eventually stop going and discussed this with the rheumatologist because I felt it was a waste of copay. I promised her to come back if I experience any pain and about a year later I did....so for the last couple years she have been doing blood work and finally diagnosed me and put me on plaquenil which… read more
Remember Lupus is a slow degenerating disease. I've had it since childhood but it was in my mid thirties that my body no longer could take the years of slow progresseve decay. It was then that necrosis, cysts, tumors, bone decay, bla, bla, bla began to happen. So take this disease seriously because if not managed it continues the drain on your organs, neurological system, it's all fair game. you should have ur blood work just to have record of if and when you flare. Tests aren't always accurate either so above all, trust your inner voice and what your body tells you. I wish you relief and peace of mind.
i delt with my minor pains for YEARS till i just couldnt take it anymore my rhum.. told me that my lupus was dorment for a long time that i probably have had it sense birth which would exsplain a lot of things when i was a kid.... when i got sick i was f en sick but then could go years with out a sniffle,,, then when i hit 30 it came back with a vengince... my doc says its not as aggresive as most but im going to have good days and bad days and when i was on all my meds i felt great but now that i dont have insurance and cant afford them all i feel it and what is killing me now is my memory i just can not think straight or speak right and its freaking me out
Lupus effects everyone differently. Your doctor had a reason for the diagnosis and it's probably correct. Be grateful that your experience is not debilitating for you as it is to some. No one knows why lupus behaves the way it's does, only that it does. Regardless of how many or how few symptoms you have, we are all in this fight together. One symptom is too many.
Memory problems are scary.. I had them too andttoday is one of this days I just feel off..God bless you all...and there is nothong wrong with getting a second opinion
You're welcome. I started out with a doctor in Greensboro NC while in school then switched to another rheumatologist when I graduated and moved back home to Raleigh NC. I think I may need a 3rd opinion and a thorough explanation of what criteria determines the diagnosis of Lupus.
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