Is anyone on it or tried it?
Yes I was on Cellcept for a couple of weeks, but then it started interacting with other meds I was on so I had to go back on Imuan. Taking a higher dose now, have been for yrs and it's worked better with all the meds I'm on. If u want to know my side effects: my rash was getting worse, was not eating, getting sick after taking the med, headache and I could go on, but I'm not. I'm not saying the medication is bad it was for me cause of all the meds I'm on. U need to talk with ur Dr about the meds u are taking now and if CellCept would have any interactions with them. For a lot of people I'm sure the medicine is a partial way out, but like I said talk with ur Dr first or Google the med and meds ur already on, become ur own Dr like I do sometimes. I've gotten out of taken a lot of meds that way that DR's wanted me to try.
My mother takes cellcept. I'm on immuran. The chemo helps with the pain and with holding back the lupus. It just depends on what works for you.
I take 1000mg (2-500 MG pills) every day.
Oh hunny I know how u feel: (. I get the same thing, first my hands, finger's so I used many lotions to help, but none then I found one Neutrogena hand cream and started using antibiotic Band-Aids. That helps:) For sores on my head I use a prescribed Betamethasone Valerate Foam cause I red spots up there too, but they are gone now. Ask ur Dr about this foam. And for the sores in my nose I use the mediated Blistex and it actually works so my Dr said keep using it and helps me breath better at nite cause get all stuffy. Try that it might help, just a suggestion. Use it around ur mouth, lips too.
Sadly I have tried a few things and the only that suppresses my immune system is prednisone 60mg-90mg daily. The lupus has effected me so badly now...my brain, visual, foggy head, sores on my scalp to the point I shaved my hair off,sores in my ears,nose,mouth...God and my feet,knees and hands when I don't take medication. I just need to find the right thing.
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