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So the ruemtologist that diagnose me with lupus says he's not putting me on meds says my numbers aren't high enough. My kidney and liver has been hurting bad for over a year I need help with this pain pain pills aren't helping

A MyLupusTeam Member said:

@A MyLupusTeam Member
It's hard for me to believe a rheumatologist would not at least put you on Plaquenil which is the first standard med given to lupus patients, especially those having physical symptoms, even if blood work does not always show active inflammation markers. You can have pain for weeks or months before it can actually show up in your tests. In the meantime you could be having organ damage occurring. There isn't much in your profile right now, so it's hard to know your exact diagnosis and treatments. If you believe your rheumatologist is not helping you, you should definitely get a second opinion. On average it takes 4 different rheumatologists before you can get the right diagnosis and the right meds you need. This statistic is unfortunately what many of us have had to endure. Most narcotic pain meds do not work well for the aches and pains experienced with autoimmune diseases, and if you do use them the effect is very short-lived and you end up with an addiction to them which is hard to shake off. Please seek another opinion. Hope this helps. Hugs, Sherry.

posted over 5 years ago
A MyLupusTeam Member said:

If your having pain in your organ's,maybe you should a kidney specialist and gastro for your discomfort. We need more then one specialist in our lives,Hugs&Prayers.

posted over 5 years ago
A MyLupusTeam Member said:

@A MyLupusTeam Member, thanks for your help this Mt second ruemtologist

posted over 5 years ago
A MyLupusTeam Member said:

I would get a second opinion! 😥

posted 4 months ago
A MyLupusTeam Member said:

SherryRasnakeMonk I do very well on oxycodone as needed. I take 5mg immediate release 0-3 times a day and have done so for about 20 years, no withdrawal, no addiction.
I was able to wean off oxycodone by taking CBD doses (full spectrum) but had to go back on it for knee replacement surgery and am weaning again.
It does seem to be less effective for lupus pain when 8 take it very regularly as I have before back surgery and after multiple surgeries.
But we are all different!

posted 5 months ago
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