Dose anyone else take topamax for any reason along with having lupus. I take topamax for migraines an have been on it for 5 years or so and it causes me not to sweat an overhead easy. I was wondering if anyone else has this problem because with lupus an being in the sun I notice I swell up like a sponge then the flood gates open an I almost pass out in a matter of minutes then I have to spend the whole day drinking water an sun sick . My doctor said it could be a combination of the… read more
@A MyLupusTeam Member tell me about your sweating! I'm
Not on topamax but these last few months I've had a time with sweating. I've never been a heavy sweater my whole life. Now when I exert myself and it doesn't have to be a lot of exertion I sweat so bad. Mainly my head. I literally drip sweat on to the floor off my face. My hair gets soaking wet and I will have to blow dry it. It is almost like I get over heated and I can not tolerate the heat. By the time I finished like making dinner I have to go change my clothes because the are ringing wet. I have an appt in 2 wks to see my primary care dr because it is driving me crazy. I've had my thyroid checked before so I don't think it if. It doesn't feel like hot flashes either. I'm curious to know your symptoms. Thanks. Sharri
YES! This happens to me with many meds (incl. Topamax) sun & hot lights ( like in a department store) trigger the sweating & feeling of wanting to pass out. Maybe someone has suggestions of how to cover up to protect from the sun/lights but without us over heating.
@A MyLupusTeam Member
I'll email Lupus Foundation and check thier site for suggestions. ❤️🙏
I just live with it! It's one of LUPUS things and also cortisone. Hugs
I had a friend who took a medication with a side effect to reduce sweating for severe Hyperhidrosis in her hands and feet. (RUBINOL) She does not have lupus, but on a beach trip, she almost had a heat stroke bc she was not sweating.
I would just be extra cautious taking in the summer, or if you plan on doing any physical activity. Just to be safe.
I used to take it, because some of my meds I thought at the time were causing headaches. I stopped taking it because I found it doesn't do me any good and now I question the reason for the headaches. I usually wake up with them and my take as needed meds arn't even in my system you know? I was hoping it would of helped me lose weight but nope, I'm one of the lucky ones that I didn't get that side effect.... lucky me again right? haha