@A MyLupusTeam Member

Yes I have. Here you go:

Benelysta - I cannot take this med because it has an ingredient I am allergic to

Xeljanz - have not taken this med because my doc doesn't feel there is enough data from lupus/RA/MCTD/Poymyositis overlap patients to be comfortable with me taking at this time

Remicaide - took 2 treatments but was allergic

Enbrel - took for 2 years and it worked very well but developed a bad allergic reaction at injection sites so had to discontinue

Humira - took 1 treatment but was allergic

Orencia - took for 1 year and it worked well but labs kept getting worse on RBCs, platelets, & liver enzymes so had to discontinue

Actemra - took for 2 years and it worked well but labs kept getting worse same as Orencia so had to discontinue

Imuran - took for 4 months but side effects would not go away and it didn't help with my symptoms

Cyclosporine - made me feel very ill with nausea and vomiting - couldn't tolerate so discontinued

Azathioprine - did not relieve symptoms

Indocin - did not relieve symptoms

Cytoxan - bad side effects and bad cell counts - had to discontinue

CellCept - bad side effects and bad cell counts - had to discontinue

I currently take these meds:

Rituximab - been taking since 2014 and it has been pretty effective so far, but it does come with side effects after each treatment - most rheumatologists will try one of the other ones above before they try this one, because it is a stronger treatment and has the potential for more side effects - I always have nausea and vomiting and terrible flares after each treatment, but the good news is you only take it every 6 months, 2 weeks apart.

Methotrexate - I don't know if it really helps me but I've been on it for a long time - it always causes nausea for me for about a day after I take it weekly

Plaquenil - been taking since day one, but I have no idea if it really helps me or not. I've gone some periods without it and really couldn't tell any difference

Cymbalta - anti-depressant prescribed for pain management - it helps some
Prednisone - take it only when I have no other option

I also take many other drugs for other heath problems associated with my disease, but have not listed them here. You can however look at my treatment profile if interested.

Hope this helps some, just remember that everybody responds differently to meds, so your experience could vary widely from mine.

Hugs to you, Sherry

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