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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anybody Taken Cellcept?
A MyLupusTeam Member asked a question 💭
posted May 24, 2016
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A MyLupusTeam Member

Yes I have been on cellcept and plaquenil for 8 months now. I tolerate it well with no side effects. I feel that it works better than imuran for me.

posted May 24, 2016
A MyLupusTeam Member

I just got off Cellcept I was in it for 3 months. My reaction to it was horrible. It caused me to flare up for the whole 3 months I was on it. It also caused me to bruise just from a very light touch. The worse tho was it caused me a migraine that could not be controlled for 2 months it was causing my ocular never to swell. I was in an out of the hospital from the pain an fevers. Also my Blood pressure would spike 170/120 an then drop 100/70 It was just a bad experience for me.

Don't let my experience worry you tho because I have a friend that has been on it two years an feels like she doesn't even have lupus anymore. I'm just very sensitive to a lot of medicine since my lupus

posted May 24, 2016
A MyLupusTeam Member

Yes I take cellcept I take 3000mg a day when I first started it made me even more tired than I already was but I have been on it for awhile now and I have no side effects from it. Hope it works out for you.

posted May 24, 2016
A MyLupusTeam Member

Wow, that is awful! My experience with most drugs is that I usually get the rare side effects that affect 1% of patients. 😕

posted May 26, 2016
A MyLupusTeam Member

Last summer when I was experiencing lupus nephritis, my doctors put me on Cellcept and Imuran. I ended up in the hospital after taking both medications... My body doesn't like itself of the drugs that purportedly will help me!

posted May 26, 2016

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