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A MyLupusTeam Member asked a question 💭

Has anyone else been on Cyclosporin? Dr is looking for another drug to add to control lupus besides plaqunil benlysta and prednisone. I had previously tried methotrexate, azathioprine and cellcept with different reasons on why we needed to switch. Since this is less common looking for more input on side effects to expect. Is there nausea when startup that goes away? Toxicity issues to look out for? Issues with contraceptive use? Anything else?

Thanks for the info.

posted August 26, 2016
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A MyLupusTeam Member

I've been taking Cyclosporine for 24 years for a kidney transplant. The worst side effect for me was that it causes facial hair growth--and when I was in my childbearing years, it was a significant amount of facial hair! Fortunately, laser hair removal, consistent waxing and aging eventually got it under control. Somewhere around year 18 or so, the very beginnings of renal toxicity began to show up on bloodwork (but no symptoms) and that still hasn't changed. Lupus is my primary concern right now--a new diagnosis--and one that may change everything. But, if a doctor is recommending Cyclosporine, my experience is that the side effects haven't been severe enough to opt out of following that reommendation.

posted January 20, 2018
A MyLupusTeam Member

My docs have been talking about that. I've been on cellcept. Haven't been on that yet I'm on plaquinil and prednisone right now but they are going to have to think of something soon

posted September 17, 2016

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