Connect with others who understand.

sign up log in
Resources
About MyLupusTeam
Powered By
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Lupus Nephritus
A MyLupusTeam Member asked a question 💭

Just wondering how Lupus Nephritus may have started for others. What treatments and other signs and symptoms? Thx

posted September 28, 2016
Be the first to like/hug
A MyLupusTeam Member

Don't stress. Chances are meds will fix it. And the meds have minimal side effects. They may want to do a biopsy, but that's no biggie. Hardest part about that is having to lay on a sand bag for an hour or two after so you don't have internal bleeding. Keep me posted!! ❌⭕️❌⭕️

posted September 28, 2016
A MyLupusTeam Member

I was diagnosed with Lupus Nephritis when I got diagnosed with SLE they did kidney biopsies on me and it showed that the lupus was attacking my kidneys! I see a nephrologist and I take CellCept amongst other medications for lupus of course I have lab work done on me every time I see my nephrologist as well as do a 24 hour urine every time as well, it's basically to check your kidney function as well as see if you have any blood in your urine and how much protein you've released in your urine if any! Your blood pressure gets checked too they basically check to see if your kidney function is stable.

of course I never had to lay on a sand bag after either of my biopsies one was to see if I actually had Lupus the other to see if the medicine I was on at the time (Cyclosporine) was causing more harm to my kidneys and it was so I was taken off of it and put on CellCept, I did however have to lie straight on my back I wasn't able to eat either and when I finally did get food I was placed on a liquid diet which I hated but I suppose it was for my own good because we aren't allowed to eat sodium and I was placed a 2 gram sodium diet it was so difficult for me because I was a child and wanted to eat the things I would normally eat but as I became older I learnt to somehow discipline myself and now I try my best to eat the things that are healthy for me and cut out the things that aren't.

don't be scared they are doing this to help you and to make sure they are diagnosing you with the right thing. Have you had any kidney biopsies done on you or did they figure all of this out through blood work and urine?

posted October 5, 2016 (edited)
A MyLupusTeam Member

Thank you @A MyLupusTeam Member how have you been?

posted October 6, 2016
A MyLupusTeam Member

Thank you! I will definantly let you know how things go!

posted September 29, 2016
A MyLupusTeam Member

Kidney Doctor

posted September 28, 2016

Related content

View all
Lupus Nephritis And Pregnancy?
A MyLupusTeam Member asked a question 💭
Has Anyone With SLE And Lupus Nephritis Who Was Treated With Cytoxan Been Able To Have Children?
A MyLupusTeam Member asked a question 💭
Pregnancy
A MyLupusTeam Member asked a question 💭
Already a Member? Log in