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Do You Ever Feel Alone With Having This Illness?

Do You Ever Feel Alone With Having This Illness?

Lately have felt alone and losing friends it has been stressful. Wondering what everyone's thoughts are.

posted January 20, 2017
A MyLupusTeam Member

I think those who suffer with Lupus often feel alone, because the disease itself is so hard to explain or understand. We really have no answers for this inflammatory disease. However, that’s what this site is all about. Here other Lupus sufferers can commiserate with each other and understand how you are feeling and why.

posted January 10, 2019
A MyLupusTeam Member

I completely feel alone and lost in this world. Every time I discuss how I'm feeling, no one responds. Everyone wants me to still be superwoman. The friends I had felt like I was either too good for them or a party pooper when simply I'm just exhausted mentally, physically, and emotionally. I don't want to hang out. I can barely hang in with all the pain, headaches everyday, and depression.

posted August 1, 2018
A MyLupusTeam Member

When I was diagnosed with SLE 48 years ago in my junior year in high school I had dozens of friends, a few close friends, too. Today, I have no friends. I have a sister, daughter, husband, Facebook, Instagram, and this site. Oh, and my lovely rescued cat.
You learn to live with yourself and how to make yourself the top priority. You learn to assertively say no, because no one wants to understand your limitations. You learn to treat yourself once in while. You learn to like being with just yourself. You learn that we’re all the same in this crazy world. You learn empathy. You learn that helping others makes you feel good. You learn that the simple life is superior to a hectic life. You learn to cope. You lesrn to forgive yourself.

posted August 16, 2019
A MyLupusTeam Member

I am feeling the same way that lol of you do . I have lost friendships , family don’t understand. My children don’t get it and at times they want me to watch my grandchildren and I’m not feeling well . They want me to be superwoman. They see me and at thy I’m not sick . Family don’t understand Lupus

posted January 18, 2019
A MyLupusTeam Member

Hi Denise, I love my family and my friend but they don't understand how hard is to have Lupus they think they know what we go through but they don't I wish they would be supported and just say though they have known idea what we go through

posted November 26, 2018

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