Has anyone done rituxan (rituxmab) treatment for lupus nephritis in addition to the normal everyday lulupus nephritis medications? I just want to know about only this medication. Thank you
Not offended at all. I've been saying ineed to move back to Europe for years Lol. Yeah its costing me ~$3800 and that's the estimated price right now so I'm sure it'll end up being higher 😑
YES ! I have both RA and SLE. It was initially for Non-Hodgkins Lymphoma (I am all Rituxan all the time- been on it for 11 yrs I think- since it was first FDA approved I was the 2nd infusion in CO). I found out almost immediately that it helped my RA dramatically (after 2 infusions-well 4 separate ones you get 2 every 6 months) I was able to return to work pt! AND My SLE was SO MUCH BETTER. No the studies initially came out that it didn't help with SLE. BUT I think it depends on what cells are being messed with.Many drugs are TNF inhibitors-they make my body worse. This drug is a B-cell inhibitor. BINGO FOR ME.
My daughter has SLE only. We use the same Rheumy who is going to try Benlysta for her- then if she fails with that they will hit insurance up for Rituxan.
It's a very big gun drug and it used to be quite expensive.BUT the company has a visa card they put at least 10K on to pay for your copay. It's an amazing company, GREAT DRUG!!! IMHO.
I'd be happy to give you any info you need that I know...I don't know specifically about Rituxan and Nephritis but I know my ex-rheumie helped use it with other drugs to help with a kidney replacement rejection (go figure) and it has been used uniquely for many things when the body has an excessive auto immune response. Might be worth checking to see if there are any studies around using it...GOOD LUCK
I'm sorry- I know it isn't FDA approved for SLE alone, however it does help. As my rheumie feels HUMANA will approve it for her if Benlysta won't help her. She has a type of arthritis (not SLE Arthritis-its inflammatory arthritis) but not RA. TBH I'm not sure she'll get the Retuxin (it's super expensive BUT if your doc writes a letter you might get it based on "off label usage". It would need to be really compelling...but it may still be problematic bc as you mentioned not FDA approved. They use it in UK for SLE (Go Figure) and in other countries...but if you decide to go to London let me know! 2 lupies are sure to make it through TSA! Hopefully! (JOKE)(Hope I didn't offend-if so major apologies)
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