It has been an odd occurance, only having happened in some form three times now. My doctor said its a weird reaction for sure, but as long as it stays infrequent and does not get worse, then I and fine to keep taking it. The injections to me now are still much preferred to the infusions. The pain from the injector is worth the convenice. I’ve been cut back to one injection every other week bc I’ve been doing so well.

Hi just came across this looking for anyone who also has experienced similar problems. I also was on Benlysta infusion and was doing good and then switched to autoinject and now I'm having side effects too, feels like I'm flaring but I think it's the autoinject. I think the autoinject delivers to much medicine at one time for my body to handle, I'm definitely gonna try to see if I can get back on infusion because I was tolerating it, felt better and now I feel the worse I have felt in a long time. Anyway anything new on with what happened to you?

I was on Benlysta infusion for over 2.5 Years and then switched to auto injections. I have noticed I’m extra tired, a bit flushed, stomach upset with a few more aches for about 24 hours then I’m ok. It’s an extra amount of medication all at once then distributes throughout the system over the next 7 days. Overall, I think it works better than infusions.

I'm only on my second subq injections. I've had some cramping and some pain after the injection and even sometimes out of the blue. And extreme tiredness. I hear a lot of people say their side effects vary a lot and also on what specific dose they get side effects also vary. The mdeicine is as odd and strange as lupus is! Sorr I'm not much help bit I hope you feel better soon!