I'm going to post my test results. I haven't talked to my dr yet. I don't go back until august 15th. Are you familiar with these results? He had said even with the previous titer of 1:160, he does not believe that I have Lupus. He is positive that I have fibromyalgia, though. Thoughts?
TPO THYROID PEROXIDASE ANTIBODIES: 174.9
Platelet antibody HLA Class 1: positive
Google is not any help with this.
Interpretation: Lupus anticoagulant not present.
ANA TITER… read more
Then he’s not searching hard enuf imo
I had a rheumatologist with a similar approach. I was crippled, swollen, covered in vascular rashes from the heat/sun....
I found another rheumatologist who saw my results and on the 1st visit he said (to paraphrase)
“There’s obviously an autoimmune problem here. It looks like Lupus and tho we haven’t caught specific antibodies yet (like dsDNA) it is ridiculous to NOT start treatment immediately! It’s cruel to wait til you get even sicker before doing something.”
He said the point is to STOP damage, not wait for more damage! AI diseases are complex. They wax and wane and over overlap with people having more than 1 AI disease. Symptoms can be confusing as symptoms from one pop up but are followed by symptoms from another. Antibody levels can rage then disappear and since we get tested infrequently they are hard to catch. All this means someone can most definitely have Lupus or any number of AI diseases yet not present as a text book case.
And while some doctors hesitate, not wanting to do something til they know EXACTLY what it is, our bodies are being damaged more and more and we suffer. None of this is necessary
Meds for most AI diseases are the same. Plaquenil is most often used for Lupus and any Mixed Connective Disease (which essentially a mix of more than one AI disease like Lupus, PM/DM, Scleroderma causing multiple cross over symptoms) A smart compassionate dr will start a patient on Plaquenil to hopefully stop progression and continue to watch for symptoms to manifest and pinpoint disease later
If you have that ANA and are also having symptoms there’s every reason to think you have an undiagnosed autoimmune disease that needs to be hunted down.
I wish you luck. I was so stressed trying to get a diagnosis, it was soul crushing at times. Then I found a doctor who recognized my quality of life was sh*t and I had anough symptoms and clinical evidence to do something. There is a doctor out there who will take you more seriously.
Demand the care you deserve 💗
Vitamin d 3 is ver low. No energy
I beg to differ. Homogenous is NOT the least concerning ANA pattern. In fact it is one of 2 that are most closely associated with Lupus
In fact, in research studies done they have determined that Homogenous ANA can and maybe should be considered positive at lower levels then other ANA patterns as Homogenous is the least likely to be found in healthy populations.
A speckled pattern on the other hand is most likely to be found in healthy populations and people with no underlying autoimmune problem. Per the research I referenced, a positive speckled ANA of 1:160 is not as concerning or indicative of a problem as a Homogenous and some doctors might not consider a speckled ANA til it’s 1:320 and up. Speckled can show up at times because of thyroid antibodies or Sjogrens. Homogenous will not
That said, many doctor don’t even look at patterns anymore because most labs can’t differentiate between them well enough
I’ve done obsessive reading about ANA since January and I’ve never seen mention of such a high titer being associated with Hashi. There are 5 people in my immediate family with Hashimotos and bad thyroid all needing treatment. None had a positive ANA. I have a working thyroid but the only one with a positive ANA
I am not a doctor .
It would appear that you have an autoimmune thyroid condition called Hashimoto's Thyroiditis. I believe that is a high level for the TPO thyroid antibodies. Is this a diagnosis that you already have? Your ANA is positive which may be a reflexion of your thyroid test result. Your vitamin D level is low so you will likely be placed on some vitamin D. My doctor has me taking 1000 IU daily.
ANA TITER: Homogenous 1:1280. This was taken from a rheumatology site.
Homogenous is the most common and the least concerning pattern of ANA. The ANA test’s results are important to consider because:
It is a first step in screening for an autoimmune disease
It may give an estimate of the severity of the disease
If the ANA titre is high (e.g. 1:640, 1:1280 or 1:2560), this indicates more severe disease
If the ANA titre is low (e.g. 1:40, 1:80 or even 1:160), there is often no autoimmune disease
If the ANA titre is in the middle (e.g. 1:320), the result is less clear and should be interpreted in the clinical context
If the ANA titre is high, other tests may be ordered to determine what type of nuclear protein is being attacked
Can you call the doctors office to see if you could get in sooner or to see if they have reviewed the test results?
What symptoms are you having?
My platelets are fine. I believe he did the test because of the purpura I get on my abdomen. I will let you know what he says on the 15th. I'm definitely going to consider seeing a different rheumy eventually. After he gives me a treatment for fibromayalgia and it doesn't work, I'll change.