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I've never done anything like this but I'm feeling so alone. I have NOT been diagnosed but have symptoms upon symptoms that are spot on with lupus I have a rheumatologist appointment coming up so fingers crossed on answers. My question is how do you cope when you feel alone in this and misunderstood? My mom knows all the symptoms and knows it's most likely lupus but is also in denial. I can't eat certain things and my boyfriend is upset about restaurant choices or me not being able to do things I said I… read more

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A MyLupusTeam Member said:

I know what you mean at work coworkers would tell me that I was just faking it. To them I look ok. Boss and coworkers had me in alot of stress. Now that… read more

posted about 1 month ago  

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