I have been diagnosed with UCTD, fibromyalgia, and also have mild Reynaud syndrome. I have had problems with dry mouth, nose sores, mouth sores, dry cough, and all of the other symptoms of Sjogrens for years also. I spoke with my Rheumatologist about it on my last visit. I am not officially diagnosed with it yet, but have been researching and trying to lessen my symptoms. They have really worsened over the last year. I have started taking sea buckthorn, using xylitol mints, and taking… read more
@A MyLupusTeam Member. Thank you so much for the suggestions. I go back to my rheumatologist this month so I can talk to him about it. I make my own magic mouthwash, and it is wonderful. Might have to try it in my nose. I did notice that the same meds I am on for lupus are the same they prescribe for Sjogrens.
For dry mouth I use Biotene tooth paste, mouth wash and moisturizing spray. Has helped with dry mouth dramatically and I have no problems. Still get mouth sores every now and then, but have no cavities or gum issues. :)
The moisturizing spray is great for keeping your mouth moist throughout the day. Great product!
@A MyLupusTeam Member. See answer above. Your name wouldn't highlight
@the dianne I am so sorry this is so late coming! I have not been able to be on much. I mix liquid benedryl and maalox half and half. Usually 2 tsp of each. Swish it in your mouth for a couple of minutes. You can swallow it every 4 hrs if you need to. If you swish between the 4 hours just spit it out. It makes you blessedly numb for a couple of hours.
Can I have your mouth wash recipe? I have MCTD with sjrogrens predominant. Without civemiline I’d be speechless. Literally I start a “clicking “ sound! On that and plaquinel, zanaflex, Lyrica. She wants to start me on cellcept but I’m Leary now of more treatment. Also have BRP arthritis blah blah. I’m so over myself!
Cheers to you!
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