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Hello. How Did You Guys Come To Accept That Everyday Can Be Different? And That You Can Be Having A Good Day And Then It Changes?
A MyLupusTeam Member asked a question 💭

I have a hard time accepting this. I also have a hard time being okay with canceling plans that I have made. Any tips would be greatly appreciated. Thank you! I hope you all have a blessed day.

posted April 11, 2019
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A MyLupusTeam Member

Most times I'll push through the physical challenge on days when it's something I want or need to do. My planning includes the down time I will need afterward. It's important to still live and enjoy life to the fullest! Most of us did exactly that before diagnosis. Yes, there are certainly times when this isn't possible. Since self care includes friendship with others who are non judgemental, I relocated to a wonderful community and left the "eye rolling relatives" far behind! Best decision ever!!! May God bless you with encouragement and peace!

posted April 15, 2019
A MyLupusTeam Member

That's been the hardest thing for me as well. I was raised always do what you say you're gonna do and be on time. And thats how I lived my life until Lupus. It has been difficult to have to leave my job, and lead a slower paced life. I have had to cancel so many times...I HATE making plans but I hate saying no all the time too....Hard to keep friends but that is the way it is...Like everyone said you NEVER know how you are going to feel and I don’t think anyone really understands or believes me half the time...Trying to spread the word on “My Lupus Journey, My Life” facebook page. Come join me.

posted May 3, 2019
A MyLupusTeam Member

I have been living with lupus since November 7/2007 when i found out i was glad i had a name for what i had im more depressed now because it seem like everythong is changing my body my hands hurt so bad right now when i walk my legs feel so heavy not knowing day to day how ur going to feel you just need to pray every night everybody dont accept it but over time i did i hope you do i pray everynight and i pray you be okay with it just remember put Gos first in everything you do

posted April 24, 2019
A MyLupusTeam Member

I personally don't make plans with friends anymore..They invite me n if the day of im up to i go..they already know n understand my situation...

posted April 13, 2019
A MyLupusTeam Member

I stop making plans ahead of time..What I do is on the day of i will confirmed if im able to go..The only plans i make ahead are vacations but with insurance in case i end up real bad...

posted April 11, 2019

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