Learning to say no and losing friends from the pre-lupus days

Learning to say no and losing friends from the pre-lupus days

My best friend from middle school, high school, college from Florida was in LA for a few days for a convention for Work with her husband. I never really talk to her anymore aside from the occasional “like” on Facebook and I haven’t seen her in over ten years . She messaged me a few months ago saying she would be in town and would love to meet up , I told her well I can’t plan ahead but we will see when Your here (knowing Subconsciously I wasn’t gonna… read more

A MyLupusTeam Member said:

It isn't weird. A normal reaction. We do have to be choosey. I try not to completely alienate myself. Going out is far and few between. I would be honest in a good way and just say you can't go out often or out to eat or have drinks. That you have to save energy for dr. Visits and normal things to just get by. Most of the catching up I do is through fb. You could tell her that. It isn't everyone else's fault that we get sad about the "old me." That is a problem I am working through in choosing to heal mentally. Prayers and thanks for venting and asking. It helps a lot of us who feel the same.

posted 4 months ago
A MyLupusTeam Member said:

I have always been a private person so anyone who is in my life is there because I want them to be , they will share in my life moving forward . People know that I am different, maybe I can’t eat or drink as they do but they don’t push . I am older then many of you so they attribute my decisions to age. That’s fine with me because I want people to spend time with me because I have something to offer not because I am sick. Age gives you a lot of freedom and gives you permission to walk through life on your terms . Be free my friends , smile often and give of yourself.. Blessing to all of you 🦋🦋🦋

posted 5 months ago
A MyLupusTeam Member said:

It’s a cruel disease robs me of a lot but one day at a time.... we are here for you!

posted 5 months ago
A MyLupusTeam Member said:

I feel for you. Nobody but Lupus people know how your life has changed. Even family members have a hard time understanding how much this disease destroyed your life. I think you made the right decision. You would have spent the night explaining your feeling bad when she knows nothing about Lupus. For a long time people couldn’t tell I was sick when I really wanted to lay in bed in a dark room. I tried to socialize but my wife finally realized that I was sick on the inside and looked ok on the outside. I do hope you get a chance to explain why you couldn’t see her since she was a good friend.

posted 5 months ago
A MyLupusTeam Member said:

@A MyLupusTeam Member It's better to have One true friend that love and stick by you no matter what than 10 others you have to deal with or keep explaining yourself. 🤗🤗🤗💜💜💜 Sometimes you just want peace to just be. And when you do want to have alil fun, you want to do it at your own speed... I get it. Just remember you are worth someone getting to know. Your being, your story is worth it. Someone knowing you can and will enrich another's life. Your strength can encourage even those who are not sick. Take care of yourself in all ways, that includes knowing you have something to offer. Those who are not sick are not necessarily better... Just differently healthy. 😊 So yes, do what you need to do to continue taking care of yourself, mind, body and soul. You are lovely and don't be ashamed or too quick to not share your fabulousness. 😁🤗😊💜💐💞 And this goes for all of us who feels like this at times. We Shine too. 🙌🏽👍🏽👏🏽💜🥰💓

posted 5 months ago
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