Anyone have sun issues due to their plaquenil? I have seen so many posts from people talking about their lupus sun sensitivity on here. I have been in the sun multiple times (with protection) and havent really experienced anything yet. Yesterday, I was sitting at an outdoor concert with my legs directly in the sun (i was wearing a dress and I used sunblock) for 2-3 hours. I reapplied sunblock every hour. Its been almost 24 hours and I have no lupus symptoms yet and no rashes at all. I do… read more
I too have brown skin. I have been in the sun with and without sunblock. The main issue I have experienced has been my skin becoming extremely hot rather quickly. Something I hadn't experienced pre-lupus. Being in the sun was never an issue for me. I also feel drained which did lead to a flare once because I didn't take heed and listen to my body and just rest. But they say everyone experience is different!
Please don't wish this on yourself. Not EVERYONE with Lupus have adverse or bad reactions to the sun. Taking precaution is different from expecting and waiting for it to happen. I wasn't really sun sensitive at first. But years later I started to be. I developed discoid Lupus which is highly aggrevated by the sun. But Stress is the worst trigger of them all. I am wishing, praying, claiming and believing for atleast the sun sensitivty part of Lupus to go away. I pray you don't develop a sun sensitivity that will inhibit your life in that way. But, it is wise to take precautions, i.e. wear sunscreen, which you should anyway, wear a hat and sunglasses. Don't get burned. Most ppl do this anyway. Always pay attention to your body, new symptoms etc. Don't worry so much about what's not happening and enjoy not having those symptoms. Thank GOD. As for Plaquenil, I'm not sure if it makes a difference. Things can have different effects on others. Blessings.... Butterfly🦋 Ps. 84:11 💜🤗🕶
I should also say that I have had lupus since 1994 and have NEVER had a burn. But the sun will give me the lupus headache and zap my energy, and not always on the same day as I am in the sun too long.