Why won’t anyone believe me?

Why won’t anyone believe me?

I was always accused of making everything up. Over reacting to the pain I was in, the depression and anxiety. Everyone would say she looks good. You have a good life why are you depressed. I can’t believe your sick again. I was told many times I have pain too. You don’t hear me complaining. You just have to make yourself do things. When I was diagnosed I would have my husband read side affects of the medications I was on. So I wasn’t accused of making myself have the symptoms. I would… read more

A MyLupusTeam Member said:

Sorry to hear the negativity of how far we have come in treating lupus. When I was diagnosed 30 yrs ago, we only had prednisone and plaquenil for treatment. And believe me they saved my life. And because of these drugs, new drugs have been invented to help patients with this horrible disease. I’m sorry you think that drs only think of making money on our disease. I guess Canada doesn’t have this issue because our health system is paid thru our govt. We should celebrate the different options now available for more of the different symptoms of lupus. I wouldn’t worry about the people not believing you. You know what you have so it’s up to you to take care of yourself. If the people around you have a problem with it, than drop those people. What you don’t need is sympathy for your disease. Stress is a killer for lupus, so stop and enjoy the life you have. What I always tell people, at least I’m on this side of the lawn. Be happy!❤️🥰😘🙏🦋🦋🦋🦋🦋

posted 3 months ago
A MyLupusTeam Member said:

The doctors do not know enough and do not care because they are making money from all the frequent visits, gazillion tests and even more meds!!! Lupus is a 3 billion dollar industry! They have no idea how to treat it, so they treat symptoms. They are not working on a cure because they do not know how one gets it. They have only created one new drug in 50 years! All this keeps us going to docs for the rest of our lives. $$$$$$$$$$$$$$$$$$$$$$$

posted 3 months ago
A MyLupusTeam Member said:

Oh bless your heart this story is far too familiar. I’ve been ill for a year now and doctors were quick to prescribe me anti anxiety and anti depressant medication when clearly there was more going on. I think doctors in general have very little awareness of lupus and fail to consider autoimmune illnesses. Take care we are here for you 🙏🏼💜

posted 3 months ago
A MyLupusTeam Member said:

I have not one friend or family member that wants to know anything about this disease. They don't want to hear it or read it. 😏
But, they're all enjoying life and not wanting to be bothered. They are not sick, so they have no idea and do not care. This is a very isolating illness. 😪

posted 3 months ago
A MyLupusTeam Member said:

Thank you for sharing I just joined the lupus group and everything you're saying the complaining people are sick of hearing saying you don't look sick and I try to just get through my days so I hear you stay strong and good luck

posted 3 months ago
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