Can anyone give me any input on Cytoxin for Lupus Nephritis

Can anyone give me any input on Cytoxin for Lupus Nephritis

A MyLupusTeam Member said:

Yes. I had Cytoxan for Biopsy proven Lupus Nephritis in 1991; one tx per month for six months. I would check into the hospital short stay unit. I was there from 7 a.m. until 3 or 4 p.m. The chemo itself took about an hour but they have to give you liquids to flush your bladder. Also, back then Zofran was not available in pill form, just IV. Make sure they give you a script for ZOFRAN, anti-nausea Rx much better than Compazine. I later used it for cancer tx. It put my Nephritis in a dormant state as of 1993 and it's never progressed since. My SLE itself remained active all those years after finally achieving remission in November 2010. I'll be honest; it's a rough chemo BUT there are better nausea Rx's these days. They have cold packs for your hair, but you may lose it anyway but it grows back beautifully. Another thing that helped combat my nausea was eating carbs, mashed potatoes, buttered peas. One more thing-chemo can cause a side effect called mucousitis. I had it in 1991 and I had it very badly in 2012 from the chemo/radiation for Metastatic cancer. It's a son of a B! But now they have something for it. A cold dispenser for your mouth. Listen to your rheumatologist, they know SLE best. However, they are NOT oncologists and Cytoxan IS a cancer drug, a very strong immunosuppressive. So if you mention the mucousitis, etc, and your rheumatologist negates it, please take it from someone who's been there. Have these things in your arsenal just in case. If you want anymore info, let me know. It's a good drug for Nephritis. I'm 61 now so it's been almost 30 years that my Nephritis is dormant. It's understood much better these days; when I received it, it was still called "experimental". Btw, my cancer in 2012 was NOT caused by the 1991 chemo. Just something in my DNA. God bless.

edited, originally posted 3 months ago
A MyLupusTeam Member said:

This is the apparatus to prevent mucousitis.

posted 3 months ago
A MyLupusTeam Member said:

I took cytoxan infusions for my lupus nephritis.It saved my kidneys I even managed to get off dialysis too and went from stage 5 to 4.Ths only side effects I got was some hairloss but it grew back and nausea but some zofran got it covered

posted 3 months ago
A MyLupusTeam Member said:

SLE Lupus

posted 2 months ago
A MyLupusTeam Member said:

I live in Maryland

posted 3 months ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in