I definitely had adverse reactions to Benlysta. The only reason I switched to infusions, was because of insurance issues. I have now been back on self- injections for about 3 weeks. The infusions however, caused me to have a really bad adverse reaction where parts of my face were extremely swollen- eyes and lips. Everyone’s experience will be different. Ive heard some ppl do really well on the infusions, unfortunately it was too much for my body to handle large dosed infusions at once. Ive attached a photo of my adverse reaction.

At first i wasnt sure that Benlysta infusions were the cause if my swelling reactions. You know how Lupus can be, right? Pretty random, at times.

Anywho, my swollen lips started after my first two injections and my eye swelled shut after my third infusion of Benlysta. Thats when i knew for sure, it was the Benlysta infusions. After stopping Benlysta infusions, i received a strong steroid to calm the reaction. I am now back on self-injections of Benlysta whereas I have never had the same swelling reaction. I will say, that i do feel significantly better on Benlysta self injections. Less joint pain and skin issues. I also take plaquenil and am on 6mg of Methylprednisolone daily.