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Can You All Please Explain To Me How Brain Fog Makes You Feel. Trying To Understand It So I Can Be There For My Daughter. Thxs.

Can You All Please Explain To Me How Brain Fog Makes You Feel. Trying To Understand It So I Can Be There For My Daughter. Thxs.

A MyLupusTeam Member said:

Seabird, why doesnt she want the teachers to know about her dx? She can give them a description of how her brain fog affects her so if she is struggling they will understand. Better to have an IEP ( individualized education plan) in place just in case she needs than not have it. If she doesnt use it, great. You can talk to the school about how an IEP can be helpful for your daughter. This can also give her an opportunity to start advocating for herself.

posted almost 2 years ago
A MyLupusTeam Member said:

It feels like when you know something and it's floating around in your brain and you just can't grab it. Imagine being an accountant and not remembering how to add when you know a year ago you could have given a class on ten key. Hope that helps

posted almost 2 years ago
A MyLupusTeam Member said:

I have the general forgetting, but the one that kills me is the inability to grasp something that I have previously grasped, like a tricky bit of theology, or a concept in physics or philosophy. I also lose words temporarily. Like for towel-I would say the blanket that dries you. Or Chair becomes the thing you sit upon. I write homeschool curriculum, so decisions are part of what I do. I have a vast library of books to utilize. Sometimes I forget title/author. Sometimes I can't make a decision to save my life. Which books to use, when to use them? I am paralyzed about deciding dinner. This makes everyone around me crazy since I am usually so decisive. My brain fog is better currently, but not gone. I never know when it will rear it's ugly head.

posted almost 2 years ago
A MyLupusTeam Member said:

I also have to program all of my appointments in my phone as soon as they’re being set or i will forget and miss the appointment, that goes for anything important

posted almost 2 years ago
A MyLupusTeam Member said:

Seabird, I don't think that coping skills will work, other than learning acceptance of lower scores. Brain fog comes and goes with me, but if she is suffering, she needs to tell her teacher. Accommodations can come with that. I imagine she is embarrassed, but this problem isn't going to go away, and she doesn't currently have the option of arranging her work to fit the ebb and flow of brain fog. Another option might be homeschooling-if it fits into your life. (thinking it would give her other options to deal with the problem). I am so sorry you two are going through this.

posted almost 2 years ago
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