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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can You All Please Explain To Me How Brain Fog Makes You Feel. Trying To Understand It So I Can Be There For My Daughter. Thxs.

Can You All Please Explain To Me How Brain Fog Makes You Feel. Trying To Understand It So I Can Be There For My Daughter. Thxs.

posted almost 3 years ago
A MyLupusTeam Member said:

Seabird, why doesnt she want the teachers to know about her dx? She can give them a description of how her brain fog affects her so if she is struggling they will understand. Better to have an IEP ( individualized education plan) in place just in case she needs than not have it. If she doesnt use it, great. You can talk to the school about how an IEP can be helpful for your daughter. This can also give her an opportunity to start advocating for herself.

posted almost 3 years ago
A MyLupusTeam Member said:

It feels like when you know something and it's floating around in your brain and you just can't grab it. Imagine being an accountant and not remembering how to add when you know a year ago you could have given a class on ten key. Hope that helps

posted almost 3 years ago
A MyLupusTeam Member said:

I have the general forgetting, but the one that kills me is the inability to grasp something that I have previously grasped, like a tricky bit of theology, or a concept in physics or philosophy. I also lose words temporarily. Like for towel-I would say the blanket that dries you. Or Chair becomes the thing you sit upon. I write homeschool curriculum, so decisions are part of what I do. I have a vast library of books to utilize. Sometimes I forget title/author. Sometimes I can't make a decision to save my life. Which books to use, when to use them? I am paralyzed about deciding dinner. This makes everyone around me crazy since I am usually so decisive. My brain fog is better currently, but not gone. I never know when it will rear it's ugly head.

posted almost 3 years ago
A MyLupusTeam Member said:

I also have to program all of my appointments in my phone as soon as they’re being set or i will forget and miss the appointment, that goes for anything important

posted almost 3 years ago
A MyLupusTeam Member said:

I can't say what others experience, I just know what I experience. Most of the time it doesn't last long. However when it rears it's ugly head it makes comprehending the simplest things so difficult. I put away my quilt patterns and anything I need to review aside until it passes. I am concerned that your daughter doesn't want those who could help to know. Knowing might help in letting her do her exams a little latter if the brain fog passes. It could also garner some understanding about what she deals with. As her mom, you have the choice to talk with her and then to her guidance counselor, she could well benefit from an IEP or 504 plan. Not everyone has to know, but it would make her life a bit easier and allow her to attain the grades she is capable of.

posted about 1 year ago
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