Did anyone see the new criteria for SLE? It involved more than 200 SLE experts from multiple countries and medical disciplines, methodologies, patient advocates and more than 4,000 subjects. The largest international collaborative SLE classification effort to date. American College of Rheumatology (ACR) and European League Against Rheumatism (EULAR) worked on developing and approving this new criteria. It is supposed to simplify the diagnostic process because it is more specific and sensitive… read more
@A MyLupusTeam Member so, this new classification criteria is considered a change in paradigm when it comes to rulling SLE in/out. I like that they added FEVER, since I had unexplained fever for months and it made me seek medical attention, which started my diagnosis. I also like that they hierarchically clustered criteria so that various symptoms have different weight. It makes sense to me that, let's stick with fever, the fever carries only 2 points while acute pericarditis carries 6 points. If total of 10 points or more = SLE. In that sense it is more straight forward and they are developing an electronic app to assit physicians in going through the new criterions, adding points and coming up with diagnosis easier. ANA, however, has to be positive at 1:80 titer or more. If less than that or negative, one is ruled out from possibly having lupus from the get go! ANA can be repeated, so there is hope that it would eventually catch those who present with negative ANA initially, but they don't believe there is such a thing as having SLE while being ANA negative. All in all, I do hope this will help with confusion and misdiagnosis overall. However, the new critera is not to be used to prevent people from getting treatment if they do not get at least 10 ponts. Again, as the previous ones, this is more geared towards standardizing patients for research purposes than changing completely clinical diagnostic practices and treatments. Sorry, I have scientific/research background so get carried away sometimes 😀 I was actually looking for new studies for SLE when I stumbled upon this news, then spent a few hours digging into everything that went on to bring this about. I wish I had great news to report on promising treatments for SLE...
Thank you for posting the information @A MyLupusTeam Member. I haven’t had a chance to read it but I’m hoping it will cut down on all the confusion from the medical community on when to diagnose.
Thank you Sana,
For the information that you have provided here.
@A MyLupusTeam Member this was very interesting, thank you so much for posting it 🤗