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I Need To Hear More About Length Of A Flare. I Accidentally Was Off My Plaquanil For 5 Wks And Still Having Lots Of Pain Severe Weakness

I Need To Hear More About Length Of A Flare. I Accidentally Was Off My Plaquanil For 5 Wks And Still Having Lots Of Pain Severe Weakness

I forgot to flll my plaquenil perscription, wass off it 5 wks, have been having serious flare since. I got back on medicine In June . 7 months of a flare that varies in severity but never ends

A MyLupusTeam Member said:

My theory is to plan me time doing whatever I want for as long as I want. I enjoy my time when I'm in a mild flare and do things I need to do. When I feel down and depressed I always seem to find something that pulls me back from that and I know I can get through my issues. I hope everyone finds something that works for them. Peace and rest tonight my friends

posted 12 months ago
A MyLupusTeam Member said:

I don't understand how you could go without it...as KarenPlatt said, you have to be diligent on taking your meds. I know they're no miracle pill but after going off mine for ten days prior to a procedure I was in so much pain and it was only into my 2nd day without so I do know it helps. And for me a flare can come even if I'm taking my meds regularly. I can wake up and feel horrible and I can feel a little bit better as my day progresses. Pace yourself...look up the Spoon Theory we at Spoonies and have to be careful how many we use from day to day. Too bad we can't get spoon donations from those who have an endless amount.
Take Care

posted almost 1 year ago
A MyLupusTeam Member said:

Hope you get to feeling better

posted 9 months ago
A MyLupusTeam Member said:

I also eat well and pray a lot.

posted 12 months ago
A MyLupusTeam Member said:

Spoon theory. The spoon theory or spoon metaphor is a disability metaphor (for a combination of ego depletion, fatigue, and other factors), a neologism used to explain the reduced amount of mental and physical energy available for activities of living and productive tasks that may result from disability or chronic illness.
I personally don't go this route, eat good food & pray is my happiness, not
a spoon theory for goodness sake. Take it or leave it.
God bless you in feeling better & having a calm evening Peggy.
X

posted 12 months ago
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