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I Have So Many Questions About My Recent Diagnosis

I Have So Many Questions About My Recent Diagnosis

Hello everyone! I’ve been recently diagnosed with early stages of Lupus??? I’ve had a connective tissue disease diagnosis for the past 5 years. This is also the second rheumatologist to diagnose me with both. I’m having a difficult time accepting this as I don’t really feel Lupus is the correct diagnosis, I almost feel like they have no idea and just threw that one out there . I have never had a butterfly rash, which I know not everyone gets. I can tolerate the… read more

A MyLupusTeam Member said:

Thank you so much for sharing this with me and I’m really sorry for your diagnosis as well! Do you think it was a little easier to finally accept it because you get the rash??? I think that’s why I can’t. I still feel like it’s something else. All these little things but not the one big red flag I guess. I know it’s something though because I never wake up feeling good. Some days are better than others, but never “normal” .

posted 3 days ago
A MyLupusTeam Member said:

You sound like me when I was first diagnosed. My hands hurt just lightly pushing a door closed, opening anything is still painful. And yes, I'm tired all the time. I had trouble accepting a lupus diagnosis. But I do get a discoid rash in the sun. Lupus is different for everyone and since most of know nothing about it until it affects us it can make it a hard diagnosis to accept. It took about a year of me saying out loud to become comfortable with it.

posted 3 days ago
A MyLupusTeam Member said:

I think that’s the thing with Lupus, everyone is so different so it’s very hard to diagnose unless you have the telltale butterfly rash.

posted 6 days ago
A MyLupusTeam Member said:

Sandy T. I never had any indicators until I got dizzy and fell to the floor. Good thing I was at work. I got to the er immediately and was given tpa. They immediately found the cause. I always thought my lupus was mild and I ignored it. Lupus is very funny

posted 6 days ago
A MyLupusTeam Member said:

Thank you so much Alaine! I appreciate this even though I don’t want to hear it 😢.

posted 8 days ago
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