I have neck pain all the time, and I dont know if my lupus plays a roke, but sometimes my muscles will feel swollen. Ive been to doctors, spine centers, and hospitals over the amount of neck and back pain for years. I went to the chiropractor, and they are open as of this week. I've tried tens unit with minimal relief, ice and heat, and epsom salt baths. I haven't been due to the fact I feel I want to wait this out and see how safe it really is in this… read more
Angel, I am sorry to hear that you are still in a lot of pain. What I am about to tell you sounds ridiculous; my husband bought me this 1 3/4 inch headband looking thing that has Velcro at both ends in the middle of the back are small little magnetics it is made by Homedics TheraP. Now that I have Lupus and Psoriatic Arthritis I've have more problems. I have tried several different things to lessen the pain. He brought this silly looking thing for me and I just looked at him like he was crazy. I had been up all night long and I thought what can it hurt to try it. I have been using it for over a year now and it has really helped me. It makes no sense to me, but it has helped me a lot. He said he bought it at Bed, Bath & Beyond for about $7.00. It might be all in my head, but it has really helps me. I wish he could find something for my back and spine with magnetics. I would definitely give it a try.
I hope you get to feeling better soon and you are in my prayers. Take care.
Hi, I am so sorry you are having such a difficult time. May I put you on my prayer list? I have had lupus, RA, Sjogren's Syndrome, and fibro for 16 years. Many of your symptoms, I have experienced too. Here is just a little friendly and hopefully helpful advice: 1) Get on Vitamin D, 5000 iu ; most autoimmune patients are low on it because we spend so much time inside. After a month it really helps fatigue. 2) Turmeric supplements with black pepper. Mine is Vimerson Health Turmeric and Ginger from Amazon. You should ask your pharmacist if there are possible interactions with your meds or Google it. There are not many that it interacts with, but I and many others I know can really tell a difference in our inflammation levels 3) Get a referral to a Pain Specialist in your area. I see a Rheumatologist as well. But it is the Pain Specialist who makes a marked difference in my pain levels! They really helped me with the shoulder and neck issue. 4) watch your posture when you are sitting, and especially when you are in pain. I didn't realize how much I crouch over my ipad during that time until my husband mentioned. He said I looked like the Hunchback of Notre Dame. LOL!! Be conscientious about it and see if using better posture when you sit helps the shoulder, neck pain any. These are only little helps. But with us little helps can mount up and eventually lead to be a big help. Keep in touch and take care; God has you in His hand and He promises if we lean on Him and He will help us through all circumstances. May He give you the strength you need today.
Hello, I’m sorry to hear all the things you are going through. I’ve has pleurisy for a year now and it seems like it’s gotten better. My rheumatologist added azathioprine to Plaquenil. I recently stepped off prednisone and my muscles and joints seem to be stiffer. Luckily my Physical Therapists office opened back up so I started going again. It helped a lot last year when I hadn’t been diagnosed yet. I had terrible nerve pain through my neck, arms, and legs. Right now I have pain in my arms, neck and back... I just started with physical therapy but i hope it beings relief soon. I take ibuprofen, extra strength extended release tylenol, and (when I cant stand the pain) tramadol. I also have pleurisy so I can relate to painful breathing. You are not alone. I hope you find something that works for you. I know with every lupus patient our symptoms are never the same and I’m sure that no single treatment will work for everyone... I’m just sharing what works for me in case it might help you. I added you to my team so you know you also have my support and a listening ear. Hope you feel better soon.