Connect with others who understand.

sign up log in
Resources
About MyLupusTeam

Connect with others who understand.

sign up log in
Resources
About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Scalp

Scalp

Have a question for my warriors. My scalp is super sensitive to touch. I don’t have or had any sores at all, just when I touch it or brush it, it’s sore and sensitive. Does lupus do this or is it a side effect from prednisone. Thanks to those that have info and answer

posted July 26, 2020
A MyLupusTeam Member

I have had and continue to have sores and sensitive spots without sores. Alopecia is present where the sores are. Before lupus diagnosis but after fibro and some erosive arthritis all over. Dermatologist has prescribed everything under the sun along with steroid injections. The only time by scalp has cleared in the last 20 years is when I take antibiotics and steroids by mouth (both at same time). Yes, I tell every doctor. Dermatologist says the scalp issues and scalp sensitivities are nothing to do with lupus or fibro. I think she is very wrong. I have both types of migraines, the regular ones not often, but ocular migraines on a regular basis. I know I have neuropathy in my hands feet legs and maybe face as I do have tingling and numbness and sometimes pain; based on rheumatologist findings, he has referred me to a different neurologist with Vanderbilt to look after that They are so booked that I don't get in til November (referred December, 2020). You guys have so many of my same issues: crawling skin, one spot of painful, deep, itching ...like a hot poker stuck you. Sometimes I just itch all over and have to take additional allergy medication(already take 4 different allergy meds to keep eosinophilic asthma at bay) and soak in epsom salts . Back to the scalp, I get the most comfort by dabbing apple cider vinegar on any raw spots and then washing my hair with a mixture of shampoo and epsom salts and follow with mixture of conditioner with epsom salts. Rub both into scalp very well but gently and rinse. It does help more than the prescriptions. Hope everyone finds answers. I appreciate the sharing.

posted September 27, 2021
A MyLupusTeam Member

Yes, sadly this is common. The medical term is allodynia. Tell your doc this is happening. If you suffer from migraines this can also trigger this and can be a sign of worsening. If you have other symptoms like weakness or numbness or tingling in face arms or legs, seek immediate care!! Take care of yourself.

posted July 26, 2020 (edited)
A MyLupusTeam Member

First, is it your scalp or skull that hurts? My scalp itches all the time. I don’t know why because no dermatologist can see anything. But I also have a painful skull because I had Bell’s Palsy twice. I have no idea if that was part of the lupus.

posted July 26, 2020
A MyLupusTeam Member

lupus does this as I used to have it before taking any meds or knowing I had lupus.

posted July 31, 2020
A MyLupusTeam Member

I keep a Tar Shampoo on hand at all times. It smells bad but it does help with the pain it causes. You can find them at your locale stores where they care a lot of hair products. They may also have it in the Pharmacy.

posted July 27, 2020 (edited)

Related content

View all
Head Sores
A MyLupusTeam Member asked a question 💭
I Need Some Opinions Regarding Butterfly Rash And Hair
A MyLupusTeam Member asked a question 💭
Scalp Sores
A MyLupusTeam Member asked a question 💭
Already a Member? Log in