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How many on here suffer from lupus nephritis? If so what are your current treatments. My symptoms right now include lower body edema and high blood pressure. I am taking cyclosporine but want to seek out other treatments with my nephrologist. What are your symptoms and other medications that you take for a nephritis?
I started out with lupus nephritis in 1988 with edema, too much protein and high creatinine. High doses of prednisone was the treatment for awhile. Then I was taking Imuran. Later CellCept. Right now we are trying to get my blood pressure under control with three medications. I still have the same symptoms and recently got the CellCept increased and prednisone lowered. I have been at stage 3 for years, but at one point stage 4 in the early 90's.
There are some new treatments for lupus nephritis in trials now. Let's keep our hopes up for a cure for lupus and lupus nephritis.
When I was first diagnosed with lupus nephritis I was put on cellcept. I had to much protein in my kidneys. My kidneys are much better now.
They put me on cytoxin infusions for about 3 months when my kidneys almost failed. I had bad edema too and to much protein. But cytoxin and prednisone got me back to normal kidney function. Good luck!
I am on Plaquenil and have been for about 5 years. It helps with the Raynaud’s by keeping me somewhat comfortable where other people think I’m crazy for wearing layers or a coat in the heat of July. For the 3rd stage kidney disease, I take Cipro everyday for life, I’m told
@A MyLupusTeam Member I’m only taking plaquenil. I see my nephrologist every year. I was on cellcept for 2.5 years. Hope you can find a medication to help you.
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