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Plaquenil

Plaquenil

Does everyone plaquenil or have you opted out of taking it? I was taking it. My other doctor stopped it now my new dr want me to restart. Thoughts or suggestions will be helpful.

A MyLupusTeam Member said:

I also take plaquenil and I've been on it for about 8 years now. I had also been on prednisone and cellcept. It took about 2 and a half years to bring my raging lupus under control, but once it did, my rheumatologist put me just on plaquenil. About two years ago, my rheumatologist had me stop it to see if I was in a true remission or if it was medication induced remission. Turns out it was medication induced so back on I went. I had just been taking a regular dose (200 mg) in the morning, but then the pain got really bad in my hands and increased in some other joints as well. So my rheumie started having me take 200 mg am & pm. It's helped a lot. I do have to get my eyes checked annually, but my ophthamologist assures me that once a year is plenty (if nothing happens) and any damage that's done within that year is generally reversible once plaquenil is stopped. So far, so good with the eye checks. My worry is that I'll end up in that very small percentage (< 5% I was told) of people who do develop eye problems due to plaquenil and that I'll have to stop. I don't know what I would do if that happens since I'm so dependent on plaquenil.

posted 6 months ago
A MyLupusTeam Member said:

Thank you

posted 6 months ago
A MyLupusTeam Member said:

I've been taking it off and on for 38 years. Out of everything I've had to take over the years, it's the most mild in side effects. Yes- you'll need to get your eyes checked but they have great technology to alert them to changes sooner than before.

edited, originally posted 6 months ago
A MyLupusTeam Member said:

I been on plauqenil for quite sometime now

posted 6 months ago
A MyLupusTeam Member said:

It's my maintenance medication, although I have attempted to just stop and not taking it but my rheumatologist told me its fatal. Im also taking prednizone so I have both, prednisone and plaquenyl.

posted 6 months ago
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