Does everyone plaquenil or have you opted out of taking it? I was taking it. My other doctor stopped it now my new dr want me to restart. Thoughts or suggestions will be helpful.
I also take plaquenil and I've been on it for about 8 years now. I had also been on prednisone and cellcept. It took about 2 and a half years to bring my raging lupus under control, but once it did, my rheumatologist put me just on plaquenil. About two years ago, my rheumatologist had me stop it to see if I was in a true remission or if it was medication induced remission. Turns out it was medication induced so back on I went. I had just been taking a regular dose (200 mg) in the morning, but then the pain got really bad in my hands and increased in some other joints as well. So my rheumie started having me take 200 mg am & pm. It's helped a lot. I do have to get my eyes checked annually, but my ophthamologist assures me that once a year is plenty (if nothing happens) and any damage that's done within that year is generally reversible once plaquenil is stopped. So far, so good with the eye checks. My worry is that I'll end up in that very small percentage (< 5% I was told) of people who do develop eye problems due to plaquenil and that I'll have to stop. I don't know what I would do if that happens since I'm so dependent on plaquenil.
An ex learner of mine with Lupus lost her eye sight and because deathly ill when she stopped the plaquenil
I was just told to stop after two years because of eyes. Been off about a month and really having joint problems.
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