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In A Flare, What Does It Look Like

In A Flare, What Does It Look Like

So though my labwork was first to diagnose lupus and even Sjogrens, I didn't have pain or anything...but 5 years later I find my allergies are terrible, can't be outside for long periods of time, was diagnosed with arthritis and degenerative disc disorder in my T spine and in pain all day almost...my skin is always dry, and I always seem to have dandruff...what do others experience

A MyLupusTeam Member said:

Well I experience severe pain in my legs. I have for 50 yrs. Fatigue is the next worst symptom for me. Foggy brain is a complete nusaunce. When I get that my thoughts r slow and so am I. My skin which is an organ is being attacked. I am mending but I have brown colored patches where the sores broke out. The immune disorder attacked my liver and left a cirrhosis situation. My lungs have been conpromised. I can't go outside due to the sun as it stings my skin. I have to wear long sleeve shirts long pants a wide brim hats and sun glasses. I was never a tanner but I did like to swim. I'm going to try swimming for maybe 5 min this year. I've had sores in my mouth due to lupus. I have developed arthritis in hands and knees and hands. I had a hip replacement which went really well. I'm getting continuas UTIs. I have to have my eyes checked every ye due to taking plaquenel. Evidently it can cause problem. I'm not on pain meds which.only makes it tolerable a little. I have neuropathies in my feet. Everyone is diff. Some have lupus very easy not many symptoms. I just happen to have many. I'm learning to do the best I can every day. I have a wonderful husband who takes care of gardening and my numerous pots. He does laundry and emptys dishwasher. I can't walk very far maybe half a block and I am so fatigued so I got a walker with a chair. This has allowed me to do some things. I'm only allowed out of the house for dr appts drive thru fast foods, pharmacy and a rest that is seating with social conscience in mind. Well this got long. Sorry I am a talker but I must have needed to go on and on. Welcome. Jean

posted 12 days ago
A MyLupusTeam Member said:

I have the same diagnosis with arthritis in my spine (unsure what kind ) No dandruff but as of recent . Itchy itchy scalp

posted 13 days ago
A MyLupusTeam Member said:

Yes Lori prayer does go along way. I just wish I'd get a Pos answer instead of a no. I think I am meant to go thru this. But if I have my choice I will never have this in any of my next lives. This is crap.

posted 5 days ago
A MyLupusTeam Member said:

My daughter has exactly same thing. We both are afflicted with this. She sees neurologist for her back, and rheumatologist for rest. Me, my list of mds is as long as my list of meds. Go day to day, prayer changes things.

posted 5 days ago
A MyLupusTeam Member said:

I've had 11 back surgeries, hip replaced which is sinking down into leg bone cause of erosion osteoarthritis, fibromyalgia, SLE lupus & Diabetes 2, so yes my skin is also sensitive to pollen & sunlight. I don't spend much time outside either My skin breaks out with lesions on arms & yes my skin is very dry when exposed to pollen in air. I've been in so much pain last 5 days i had to go to ER. They put me on antibiotics & anti- inflammatory meds, which helped some. I thought i was passing a kidney stone, but the stone is in other kidney, ugh.There is so many different symptoms with your body having so much going on. Never ending battle at times! Maybe talk to your Dr see if anything they can do! Take care, sorry to all for so long!

posted 13 days ago
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