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Figuring Out How To Inform My Children And Explain To Them My Lupus Condition

Figuring Out How To Inform My Children And Explain To Them My Lupus Condition

I have yet to let my kids know about my lupus. Considering my older 2 (19 &16) remember the active, full of life, very invovled sports mom they had when they were younger. My youngest (10) has not been so fortunate and I feel so guilty. my symptoms have gotten pretty bad as in Im extremely fatigue most days and sleep takes over most of my time. My ankles, feet, wrists, and shoulders hurt alot so I take epsom salt baths at least 2× a day. This is gross and unsure if the lupus is causing this… read more

A MyLupusTeam Member said:

Please be honest with your kids. You are doing them
And yourself a disservice. In program they say you are as sick as your secrets. Give your kids the opportunity to participate

posted 12 days ago
A MyLupusTeam Member said:

The book Coping with Lupus helped guide me tell my 13yr old and other family and friends.

posted 10 days ago
A MyLupusTeam Member said:

Hello, I totally agree with Phyllis. I think you should definitely let your children what is going on. We need to be honest with them. You do not want them to think that you have gone back to drugs sweetie. Pray about this and you'll see that it's the best thing to do. I believe you have too much stress and keeping this from the truth makes it worse. Remember stress is so so bad for Lupus. I believe that once you get this out you'll start feeling much better from your emotions. Give them a chance to listen to what you have to say. Lupus is not a fun thing to have, I understand that because I go through a lot of pain too, and try to hide it. I'll be praying for you my dear that you are able to tell your children the truth about your health. Please keep us posted. God Bless

posted 11 days ago
A MyLupusTeam Member said:

First of all congratulations nana, I’ve got 2. 1. I would pray. There’s nothing that GOD can’t do. 2. If you have a lupus md, take her with you, let her ask questions. 3. Write your children a love letter that only a mommy can do, from your heart. 4. Finally just like number 1....give everything over to JESUS, and don’t take things back. He will do what you can’t do if you let him. Find the holy bible. If you need a copy, his would be happy to help you. There’s also ark of Amanda Grace.

posted 5 days ago
A MyLupusTeam Member said:

God Bless You.......You are going thru so much at the same time. Keep saying NOT GUILTY bc you are not.. Use as many AA Zoom meeting as possibly. In program we learn to put everything in God's hands, and if we take care of ourselves first, everything will fall into place. Talk with your children bc we know that pain shared is pain divided; joy shared is joy multiplied. God Bless You

posted 9 days ago
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