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Antiphospholipid Antibody Syndrome, Infraction Of The Brain, Vasculitis

Antiphospholipid Antibody Syndrome, Infraction Of The Brain, Vasculitis

My MRI came suspicious of these three things.
I managed to book with rheumy before neurologist. What I should demand for besides my legs being checked for clots and baby aspirin?
Labs aren100% okay the doctor doesn't believe me.

A MyLupusTeam Member said:

In the Lupus Encyclopedia there is a list of blood tests to run to identify the anti-phosolipid factor. Be awate that even though it may not be present in the test it can still be there. I had a rheumatologist at the Mayo clinic take the time to run all the tests needed.

posted about 1 month ago
A MyLupusTeam Member said:

@A MyLupusTeam Member is it possible you could list the tests or take a pic and post it here to aid Filipa? She is on her own in Japan without the resources we have here. I do not have access to the book.
Filipa is it possible you could say what MRI showed? I could look it up for you. I know you’re feeling awful and I suspect overwhelmed. Sending my love and gentle hugs.

posted about 1 month ago
A MyLupusTeam Member said:

@A MyLupusTeam Member I think so. . . When I have a spell/sezuire that I think is vasculitis/heart related (though uncomfirmed) my left ear will ache badly.

To be safe though, get it checked out to make sure there isn’t an infection, or allergies or another cause of inflammation causing too much pressure to build up in your ear canal/ear drum area.

posted 29 days ago
A MyLupusTeam Member said:

I was looking for the tests you might want to look up before speaking with neuro and next rheumy appt. I’ve heard others here speak to how good the Avise testing is but of course you are in Japan so things are likely different but here’s a screenshot I took that might be helpful

posted about 1 month ago
A MyLupusTeam Member said:

There are a bunch of antiphospholipid syndrome (APS) Facebook groups. They are all private so I couldn’t research them without joining. They may be able to provide you with better information and support especially I would think there would be at least one or two for APS and SLE. 💋

posted about 1 month ago
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