I have had lupus Sle but haven’t had issues in a while. My kidneys failed in 2009 but they came back after chemo treatment. I’ve had little flares here and there but I just recently started to feel exhausted, ulcers in mouth, migraines, brain fog, pain all over muscles and joints. Red flaky rash patches on face. I’ve also have been dealing with stomach issues for a while now that they can’t figure out. I got these test results and of course my doctor is closed. Does anyone have any experience… read more
sounds like the test was off big time, may not have been run correctly at lab or stored correctly. Re-test ASAP
Hi Amy Lindahl,
u might want to find a urologist who has a large Interstitial Cystitial practice. Many patients with SLE also have IC.
Hi Crystal, .
I am followed by a kidney specialist as my creatinine results go up + down, but not to kidney failure levels
. My sle flares start with migraines, then rosacea, insomnia, brain fog, nausea, IBS.
+ costochondritis every 6 weeks. What meds are u on for SLE? Prednisone helps for pain somewhat. I belong to a hospital based pain Clinic in Boston, MA. My SLE has affectedy lungs ( pleurisy)inspite of the fact I never smoked cigarettes.
My Sister chose not to be on dialysis, she was my best friend and I miss her.
I don't know much about blood and urine work, my Dr. is worthless. I see a urologist occasionally as I always feel like I have a bladder infection. I'm trying to take better care of myself and educating myself but the more I read the more scared I feel, I can't sleep already this is not helping me in that respect. I hope your feeling better. I haven't gotten out of bed today so tired and overwhelmed.