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Prednisolone & Chest Pain

Prednisolone & Chest Pain

I've been on Pred for 7+ Years and can't seem to get off it due to severe chest pain whenever I go under 5.5mg. Sometimes I worry that it's all in my head but I honestly don't think it is. I was diagnosed with pericarditis early in 2018 but since they think it's gone (Ultra sounds and all agree)

Has anyone else had this issue? What did you find help? Any detailed advice is welcome!

Thankyou in advance

A MyLupusTeam Member said:

I've been on prednisone since I was 12. I'm 41 now. Been on 10 mg steady and up and down through pregnancies and what not. Pretty sure my adrenal glands are not working. I can't get below 9. I'm not sure how old you are but in my own personal opinion. I'm older, I don't have osteoporosis, my sugar levels are low and realistically your body produces about 9 mg cortisol a day and if my adrenal glands at this point are not working then... it's a wash

posted 4 months ago
A MyLupusTeam Member said:

That’s along time to be on prednisone and I don’t know how high a dose you were on. I would suggest getting in the hands of an endocrinologist also who can help taper you a safe way and check and make sure your adrenals are kicking in, that’s what I did when I was tapering off, and I was on 10mg for only 13months b4 I started the tapering process which was hell for me, but she Definately helped me. Good luck

posted 4 months ago
A MyLupusTeam Member said:

Great thought about the stress test. I saw a cardiologist yesterday and he said that may be helpful in the future. At the moment I’m managing the pain though cholchicine morning and half at night. I’ve managed to get down by .5 in two weeks by swinging my doses. Hope that helps anyone here as well!
Thanks again for posting everyone, so appreciate the advice

posted 4 months ago
A MyLupusTeam Member said:

Hi @A MyLupusTeam Member, I have experienced cardiac symptoms since my twenties- I’ve done LITERALLY every test with negative results. I’m finally concluding that some episodes must be tied to flares. Such a frustrating and exhausting disorder! Be well ☺️

posted 4 months ago
A MyLupusTeam Member said:

This is good to know. Thank you so much

posted 4 months ago
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