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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Alloydonia

Alloydonia

Is this part of Fibro. My nerve endings are on fire and skin sensitive to touch. How is this treated and what helps. It has been bothering me but getting worse. I asked my PCP if it’s alloydonia what causes it, he was no help but I find him clueless anyway.

A MyLupusTeam Member said:

I am on Gabapentin/Neurontin and this helps me too.

posted 2 months ago
A MyLupusTeam Member said:

I have periphal neuropathy but my skin hurts to even have my clothes touch it. I do attribute that to fibromyalgia more than my lupus. I take 300 mg of gabapentin 3x's a day and it has helped but there are still some days that the diseases prevail.

posted 3 months ago
A MyLupusTeam Member said:

My rheumatologist is sending me to Neuro due to neuropathy legs, feet,and I think hands too. I have both fibro and lupus

posted 2 months ago
A MyLupusTeam Member said:

@A MyLupusTeam Member, allergic to a lot of meds, I am sensitive also, especially to a lot of generic brands. Gotta love those fillers. How are you treating your diseases then? Are you on big pharma meds at all? You take care and stay safe

posted 3 months ago
A MyLupusTeam Member said:

Maybe some CBD cream?

posted 3 months ago
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