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I Need Some Opinions Regarding Butterfly Rash And Hair

I Need Some Opinions Regarding Butterfly Rash And Hair

I have been on hydroxychloroquine for about 9 months. It has helped a lot with the painful hives I was getting from waist up. I have not had them since starting the hydroxychloroquine. My butterfly rash however has not changed. If anything it has been worse. A lot of flare ups that last sometimes days. It feels like my face is on fire. Nothing covers it. I have tried everything but you can still see shadows of the butterfly rash even if I am not having a flare up. Sometimes it looks like… read more

A MyLupusTeam Member said:

After much research:
Mustard Oil (only 3 times per week, for
2 hours each. Saturate our scalps & hair,
into a shower cap or cloth cap/turban.
Also can take a teaspoon of it a day, it's
filled with great vits. Do some googling
on Mustard Oil, it's different than Mustard Seed.
I also do Keratin products.
& today at Sally's,
the gals told me this was way better:
Mint Condition
a tingling scalp conditioner (they also carry the shampoo, so I got the set).
around 13.00 for an 8 Fl Oz's
Tri-touch applicator provides direct-to-scalp moisture to thirsty, dry scalps
Helps your scalp & hair maintain its most optimal state
Adds back in moisture and conditioning benefits after using Master Cleanse
Helps promote hair growth
Great for all hair textures

As we age, things certainly do change 💚

posted 4 months ago
A MyLupusTeam Member said:

skin specialist have a section where they sell
special creams, & give good advice.
I did Hydroxychloroquine 8 yrs & it made me
slowly go crazy, eyes were cloudy, I had to
quit. Have met a younger women that had been
taking it most of her life & she crippled, it did
not do a thing for her bones, nada.
Super good SPF all over, head to toe, every morning,
weather we're planning to go out or not.
Super big rimmed hats that are anti sun material
(some really pretty ones out there!). Big sunglasses.
Cover your face, cover our faces, omg, it's a
big drag but we have to go with the flow or we suffer.
Bless you in finding your own way in this fun journey.

posted 4 months ago
A MyLupusTeam Member said:

They diagnosed me with sle. My hair just keeps getting shorter and thinner. I used to get terrible hives but since hydroxychloroquine I still get the feeling of having the hives but they are not there. I have been researching so much on the hair loss. It’s overwhelming.

posted 4 months ago
A MyLupusTeam Member said:

Do you have discoid lupus? I have discoid lupus and i am also on hydroxchloroquine but i have a lot if hair loss. My rash is on my arms. I need help with my hair loss. My dermo doesm’t think it is bad but i find my hair sll over the house and always on my clothes.

posted 4 months ago
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