I just read that benlysta is the only new fda approved medicine approved for people with lupus who have been using other medicines for lupus…. In the past 60 yrs. But thats all the info i could find on it. So… who has used it…. Why .. what did it do? I want to know everything!! Thanks!
Benlysta, and this year another IV drug, are the only FDA approved for Lupus in conjunction with other Lupus treatments. My infusions go well, and really help with my joint pain, stiffness, the facial rash, and some of my swelling. I am also on Plaquenil and CellCept, so together they really help quite a bit. We’re still working on trying to figure out why the rash on my face, upper chest, and arms won’t go away, but at least I can have less pain for a few weeks a month while I wait for the next infusion.
I have tried all kinds of things for my lupus and just recently started Benlysta infusions. I've only had two infusions but other than the pain in tookus of going into Duke, good hour and a half drive each way, its not a big deal. Sit in the chair and wait an hour for the drug to come up, get an IV, its infused over an hour or so, sit for a few minutes and go home! I usually feel ok afterwards. In a couple of days I felt a little better in the joints. Not quite as stiff. They told me it could take up to three months to have a real reaction so I'm still in the waiting stage. I'm just happy I didn't feel worse! I've had reactions to other injection drugs so to me this is a good start. I hope it works for you! I have SLE, Sjogrehns, Reynauds with kidney, lung, joint involvement.
Im really glad that its helping with the pain for you guys though❤️❤️
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