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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced Difficulty Walking?

Has Anyone Experienced Difficulty Walking?

I have SLE and was diagnosed about five years ago and has gone rapidly downhill since. This year is exceptionally difficult with the heat waves etc. as I find I have absolutely no energy even to walk my poor dog, or do house work. Unfortunately I have reached a point where I have to look for a walker. For someone that used to be very active it playing rackets sports etc it is very hard to accept the drastic decline at the age of 77. As I also have COPD therefore I am not sure which chronic… read more

posted August 8, 2022
A MyLupusTeam Member

I recently tried a 1/2 mile hike in the Blue Ridge mountains. It was really hard and a young lady gave me a staff to use when she saw me struggling. It helped! My takeaway from this is to speak with my dr. about Physical Therapy. My son is buying me ski poles to walk with. I am not convinced that I need them, but I will try anything to remain mobile . Just keep moving 🤗

posted August 11, 2022
A MyLupusTeam Member

I experience back and neck pain twenty four sevens and I am on Pregabilin which have no use. The weather is another thing that affects me. I am weak and tired at all times, no energy to do anything. Just have to take one day at a time and fight on.

posted August 8, 2022
A MyLupusTeam Member

Yes, mine pain, stiffness and numbness started in my feet a few years ago. My doc prescribed Gabapentin for neuropathy, it didn't help, just made me groggy. After he diagnosed me with Lupus, Hydrochycloraquine was prescribed. It was a God sent, until I developed and allergic reaction. It truly helped, but there was many tests to make sure I could take it. I am taking nothing right now, waiting for my next appointment.
I hope this helps you.

posted August 8, 2022

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