Connect with others who understand.

sign up log in
About MyLupusTeam

Connect with others who understand.

sign up log in
About MyLupusTeam
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Just Diagnosed With Lupus

Just Diagnosed With Lupus

I have been on plaquenil for 5 weeks for lupus. I feel the same and sometimes even worse. Anyone else feel this way or maybe it's not the right med for me. Appreciate any comments or advice. Thank you

posted 16 days ago
A MyLupusTeam Member said:

When I first started on HCQ , I really felt like 💩. My body hurt worst when I started on it, so the dr put me on a round of steriods. Really help but can’t take HCQ anymore my body would itch so bad. Don’t see dr until Nov so they put me on steriods until I can see him. I hate steriods they blow me up. Just please be careful out in the sun wear a lot of sunscreen b/c you will burn.

posted 16 days ago
A MyLupusTeam Member said:

Hi Tammy, the plaquenil will help keep your lupus in remission but it also may not be good for you. I was on it for a year and i literally had to stop because one of it's side effect is blurred vision. You very well could looose your vision. So that was a huge no for me. My vision started to go downhill and i was left with blurry vision and swollen eyes. So you just have to decide what is best for Tammy. I knew i could handle the pain with the joints versus mot being able to see. So i stop all lupus medication and began to 1.PRAY MORE 2. EAT RIGHT. 3 TAKE CARE OF SELF... NO STRESS! Hopefully this was helpful.

posted 10 days ago
A MyLupusTeam Member said:

I’ve been on hcq since 2019 when I wazs first diagnosed. I am photosensitive because of it. I wear sunblock when I go outside and if I am in the sun without sunblock, my skin gets uncomfortably hot. I went to Abidjan, Ivory Coast for the month of May with my husband and son. My husband is from there. We had fun, but the heat and humidity was unreal! I am glad I had the sunblock.

posted 16 days ago
A MyLupusTeam Member said:

Thank you!

posted about 10 hours ago
A MyLupusTeam Member said:

Thank you

posted 12 days ago
Already a Member? Log in