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Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?

Anyone Have SLE Lupus Without Lab Markers Being Positive But With Symptoms?

having episodes of bad pain all over my body, exhaustion, fatigue and joints. had 4 episodes of pleuritis this year but lupus tests are normal except ana test and inflammatory markers during episodes. on plaquenil. tried imuran but failed due to side effects. now want to add Benlysta. anyone else have lupus like this?

posted November 29, 2022
A MyLupusTeam Member

best of luck and thank you for sharing.

posted November 29, 2022
A MyLupusTeam Member

Have only been on it for a month and the change over has been tough. Also lots of stress....selling house and going to live in RV and travel. Lots of ups and downs. Will keep you posted. Starting to feel a lot better.

posted November 29, 2022
A MyLupusTeam Member

thank you so much for that. did cellcept work? im not convinced with my rhumatologist that is why im asking. she mentioned that is for lupus nephritis and its strong but then suggested benlysta and got me even more scared.

posted November 29, 2022
A MyLupusTeam Member

Yeap....took me ten years to get everything to come together and a straight up PCP to look at labs as not the definitive. Be sure to get eyes checked every year. I had been on it for ten+ years and had my first scare. Went to Cellicept.

posted November 29, 2022

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