Has anyone been prescribed Acthar Gel Injections for Lupus Nephritis?? I'm having horrible side effects on Prednisone and my Nephrologist suggested Acthar as a non-steroid alternative. I'm having trouble getting my insurance company to approve it, but still hopeful that I can obtain it and get some relief. I know it's a very expensive drug, but has anyone had any good/bad experiences with it??
Is there anyone else here who has gone through menopause and yet still gets swollen painful breasts several times a month? I am trying to find out if the swelling and pain that I am getting several times a month in my breast is related to my autoimmune disorder. It seems so odd because I am completely through menopause. Do any of the rest of you experience this?
Hi, has anyone taken Nabumetone? I have had a really mixed experience with it. It made my pain levels drop dramatically, but it turned me into jello. All I wanted to do was sleep, severe fatigue and docs thought I was either flaring or depressed - I stopped the drug and was pretty much back to normal - hurting but clear-minded - in 48 hours. I have slept for nearly a month, I could hardly lift my head with the stuff and nobody even thought to mention that might be causing a problem for me… read more
My doctor ordered the advise testing kit and it came back showing positive on the Hep-2 cell florescence at 1:160 titer Homogeneous pattern which has been pretty consistent for the past 4 years but the Elisa ANA IgG test came back at 15 which would be negative..
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