Connect with others who understand.

sign up log in
Resources
About MyLupusTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? ask question
Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
Is Anyone Taking The New Lupus Drug Saphnelo?
A MyLupusTeam Member asked a question 💭

I just started getting Saphnelo infusions every four weeks after Benlysta stopped working for me. Is anybody taking Saphnelo and is it helping? Are you having any side effects? So far for me it's too soon to tell.

posted February 12
View reactions
What Medications Are Safe During Pregnancy That Won't Affect The Baby?
A MyLupusTeam Member asked a question 💭
posted March 14
View reactions
Does Anyone Else's Skin Get Irritated With Smokers Around You
A MyLupusTeam Member asked a question 💭
posted February 16
View reactions
Lupus And Orbera Surgery.
A MyLupusTeam Member asked a question 💭

does any one have experience trying to get the Orbera procedure?

posted February 11 (edited)
View reactions
Hi Does Anyone Here Do Dialysis? If So What Kind Of Dialysis? I've Been On Dialysis Now Before Years
A MyLupusTeam Member asked a question 💭

I Started off with started off with parrot to deal dialysis at home for a couple of years but then I eventually switch to hemodialysis which I do at a community dialysis unit.

posted December 12, 2022
View reactions
Sleep Well
A MyLupusTeam Member asked a question 💭

May you have a pain free night.

posted November 16, 2022
View reactions
Looking For Good Doctors On The Eastern Shore Of Md
A MyLupusTeam Member asked a question 💭

Hello everyone,

I am looking for recommendations for good doctors near the Eastern Shore of maryland. I am tired of driving very far to see my doctors and was wondering if anyone had good recommendations for doctors.

Thanks in advance.

posted November 14, 2022
View reactions
Anyone Dealing With Both Myasthenia Gravis And SLE?
A MyLupusTeam Member asked a question 💭

I have a neurologist and rheumatologist who at times are at odds with each other. My neuro says no to Plaquenil because I am on prednisone and Cellcept. The mg causes weakness and the lupus generalized pain.

posted November 11, 2022
View reactions
New Rheumatologist
A MyLupusTeam Member asked a question 💭

Hi, I'm new on here. This support group has answered so many questions for me. I really appreciate you guys. Im looking for another rheumatologist. I live in Yadkin County NC does anyone have any recommendations that wouldn't be to far away from me?

posted July 6, 2022
View reactions
Want to learn more about our community? Check out our Getting Started Guide! Read more >
Can Anyone Recommend A ERISA/LTD Attorney?
A MyLupusTeam Member asked a question 💭
posted April 1, 2022
View reactions
Already a Member? Log in