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Has Anyone Been Diagnosed With G6PD Deficiency And If So What Did You Do To Help With Triggers? Any Info You Share Is Very Much Appreciated.

Has Anyone Been Diagnosed With G6PD Deficiency And If So What Did You Do To Help With Triggers? Any Info You Share Is Very Much Appreciated.

Glucose-6-phosphate dehydrogenase (G6PD) deficiency is an inherited condition usually occurring in males. It's more common in those of African and Mediterranean descent. Triggers include infections, stress, fava beans, aspirin, and other drugs.
When symptoms are triggered, they include fever, dark urine, abdominal and back pain, fatigue, and pale skin.
Most people recover in… read more

Acthar Gel Injections??

Acthar Gel Injections??

Has anyone been prescribed Acthar Gel Injections for Lupus Nephritis?? I'm having horrible side effects on Prednisone and my Nephrologist suggested Acthar as a non-steroid alternative. I'm having trouble getting my insurance company to approve it, but still hopeful that I can obtain it and get some relief. I know it's a very expensive drug, but has anyone had any good/bad experiences with it??

Pcos And Lupus

Pcos And Lupus

Does anyone have both ? What do you do or take to manage these?

Sharing Covid Rheumatology Survey Info

Sharing Covid Rheumatology Survey Info

Sharing this info:

https://rheum-covid.org/

PLEASE: If you have been infected with COVID-19 and have a rheumatologic disease, please sign up for this important register so that we can learn about its effects.

SHARE with everyone and all online patient groups who have #lupus, #Sjogrens, #RA, etc.

Stay safe, everyone!

by Don Thomas, MD
lupusencylcopedia.com
(Email address can only be seen by MyLupusTeam users)
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Can Ibs/diarrhea Affect Plaquenil Absorption?

Can Ibs/diarrhea Affect Plaquenil Absorption?

I would be grateful to know if any of you have experienced diminished plaquenil absorption (effectiveness) due to diarrhea and/or ibs?

Relafen/Nabumetone

Relafen/Nabumetone

Hi, has anyone taken Nabumetone? I have had a really mixed experience with it. It made my pain levels drop dramatically, but it turned me into jello. All I wanted to do was sleep, severe fatigue and docs thought I was either flaring or depressed - I stopped the drug and was pretty much back to normal - hurting but clear-minded - in 48 hours. I have slept for nearly a month, I could hardly lift my head with the stuff and nobody even thought to mention that might be causing a problem for… read more

What Is The Difference Between The Elisa ANA Test & The Hep2cell Fluorescence?

What Is The Difference Between The Elisa ANA Test & The Hep2cell Fluorescence?

My doctor ordered the advise testing kit and it came back showing positive on the Hep-2 cell florescence at 1:160 titer Homogeneous pattern which has been pretty consistent for the past 4 years but the Elisa ANA IgG test came back at 15 which would be negative..

Medication

Medication

Has anyone ever used Acthar? If so did you use it inconjuction with cellcept and plaquenil? What was your experience?

Rheumatologist In Central Ma Area

Rheumatologist In Central Ma Area

I have SLE, fibromyalgia and CFS. My current rheumy is retiring soon and I am desperate to find a rheumy who is invested in his patients and one whom I can confide in. In the past, I haven't had much luck, with the exception of current rheumy.
If anyone can recommend a rheumatologist in the Worcester Central Mass area, I would greatly appreciate it.

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