Long story short, diagnosed with tumid lupus and sent for blood work. ANA results positive. Waiting on rhumatologist apt.
I would like to go into the apt with a clear idea of what to ask, what I need to know, what I should be expecting of him. (I have read both very positive and very negative reviews, and hoping going in with a clear expectation will help!)
Based on non stop reading and other symptoms I am fairly confident I will coming away being told it is SLE.
Has anyone been prescribed Acthar Gel Injections for Lupus Nephritis?? I'm having horrible side effects on Prednisone and my Nephrologist suggested Acthar as a non-steroid alternative. I'm having trouble getting my insurance company to approve it, but still hopeful that I can obtain it and get some relief. I know it's a very expensive drug, but has anyone had any good/bad experiences with it??
Hi, has anyone taken Nabumetone? I have had a really mixed experience with it. It made my pain levels drop dramatically, but it turned me into jello. All I wanted to do was sleep, severe fatigue and docs thought I was either flaring or depressed - I stopped the drug and was pretty much back to normal - hurting but clear-minded - in 48 hours. I have slept for nearly a month, I could hardly lift my head with the stuff and nobody even thought to mention that might be causing a problem for me… read more
My doctor ordered the advise testing kit and it came back showing positive on the Hep-2 cell florescence at 1:160 titer Homogeneous pattern which has been pretty consistent for the past 4 years but the Elisa ANA IgG test came back at 15 which would be negative..