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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Been Diagnosed With G6PD Deficiency And If So What Did You Do To Help With Triggers? Any Info You Share Is Very Much Appreciated.

Has Anyone Been Diagnosed With G6PD Deficiency And If So What Did You Do To Help With Triggers? Any Info You Share Is Very Much Appreciated.

Glucose-6-phosphate dehydrogenase (G6PD) deficiency is an inherited condition usually occurring in males. It's more common in those of African and Mediterranean descent. Triggers include infections, stress, fava beans, aspirin, and other drugs.
When symptoms are triggered, they include fever, dark urine, abdominal and back pain, fatigue, and pale skin.
Most people recover in… read more

Struggling With Lupus

Struggling With Lupus

How of us like a burden to like you give full attention to themeeting and they you feel bad for something you can't control

Acthar Gel Injections??

Acthar Gel Injections??

Has anyone been prescribed Acthar Gel Injections for Lupus Nephritis?? I'm having horrible side effects on Prednisone and my Nephrologist suggested Acthar as a non-steroid alternative. I'm having trouble getting my insurance company to approve it, but still hopeful that I can obtain it and get some relief. I know it's a very expensive drug, but has anyone had any good/bad experiences with it??

Can Ibs/diarrhea Affect Plaquenil Absorption?

Can Ibs/diarrhea Affect Plaquenil Absorption?

I would be grateful to know if any of you have experienced diminished plaquenil absorption (effectiveness) due to diarrhea and/or ibs?

Relafen/Nabumetone

Relafen/Nabumetone

Hi, has anyone taken Nabumetone? I have had a really mixed experience with it. It made my pain levels drop dramatically, but it turned me into jello. All I wanted to do was sleep, severe fatigue and docs thought I was either flaring or depressed - I stopped the drug and was pretty much back to normal - hurting but clear-minded - in 48 hours. I have slept for nearly a month, I could hardly lift my head with the stuff and nobody even thought to mention that might be causing a problem for… read more

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