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Anyone with rashes that look like this?

Anyone with rashes that look like this?

This rash showed up Saturday and started out itchy but now is just extremely painful. I'm 95% sure this isn't poison ivy or anything because I've been inside due to lots of rain. I have been using hydrocortisone cream but not working. Any help would be greatly appreciated.

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A MyLupusTeam Member said:

@A MyLupusTeam Member, No bc my Rhemy said I've had Shingles so many times (7) until he believes I'm now immune. Each episode became less and less… read more

posted 2 days ago
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Skin issues

Skin issues

What are some skin issues that you have now that you did not before diagnosis? I have noticed that I have very bad razor burn every time I shave. It burns and itches terribly. I am way more prone to heat rash and bumps that resemble folliculitis between my thighs. My skin sometimes itches. I get pimple like lesions on the tops of my arms as well as on my chest. And my actual acne seems to have gotten worse. Does anyone else have these problems?

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A MyLupusTeam Member said:

I used the veet wax strips at home and they worked remarkably well. Much longer lasting effect than shaving and less irritation afterwards :)

posted 2 days ago
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Does anyone have issues with intimacy?

Does anyone have issues with intimacy?

I have noticed since my Lupus has progressed that there is less going on the relations department. Apart from the fact that I feel a bit uncomfortable in my "extra" self, I haven't been "in the mood" at all. I find my husband to be one of the sexiest men I've ever seen but for some reason I am lacking in the urgency department. It's frustrating. Luckily for me, he is very understanding about it. We talked about it...(more like I cried & he listened) and he told me that… read more

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A MyLupusTeam Member said:

Thank you PurpleRibbon3

posted 2 days ago
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Nausea

Nausea

I know a lot of us struggle with nausea but does anyone else feel it worse in the morning? Almost like morning sickness

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A MyLupusTeam Member said:

@A MyLupusTeam Member my Rheumy’s nurses told me I could stop taking PPI as soon as flares slows down. And I can get off taking the 2 meds that cause… read more

edited, originally posted 4 days ago
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Worried

Worried

Does anyone else feel anxious the night before seeing their rheumatologist? I know I’m in a flare and that my labs will be terrible. My rheumatologist will want me to take more medication...currently only taking Plaquenil. Just feeling worried and dreaming of life before lupus. Any words of encouragement?

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A MyLupusTeam Member said:

My rheumatologist always tries to get me to take more meds but after I already told him no he stops asking and I actually stopped plaquenil and my labs… read more

edited, originally posted 4 days ago
4 medium

Circular rashes?

Circular rashes?

Anyone get these circular scaly rashes? I've had one on my neck for several months now, and although my other rashes have gone away with Plaquenil, this one is super persistent. It also doesn't respond to Elidel or antibiotics. I can't use steroids because they trigger facial dermatitis I've used lotions like Aveeno and just pure Shea butter, but they did nothing as well. It's just a circular, scaly rash that peels, really itches, and occasionally burns. It started out the size of a nickel, but… read more

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A MyLupusTeam Member said:

Yes I do take Lupa Vita PM I like it my doctor wants me to take when I cant sleep because of joint pain. This Rheumatologist that developed these… read more

posted 4 days ago
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Starting to understand this neuropathy. Sharing in case it's helpful.

Starting to understand this neuropathy. Sharing in case it's helpful.

I had a nerve conductivity test last week, which showed nothing, because as I learned, the EMG test is for large fiber nerves, and what is common in Lupus is small fiber neuropathy, which is tested for through skin biopsy. Also, the neuropathy pattern common in Lupus includes the face, torso, thigh, which is uncommon in most other types of peripheral neuropathy, so many rheumatologists seem to think it's not related. See email and research… read more

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A MyLupusTeam Member said:

Plaquenil helps joint pain from what I've been told by physicians Neurontin or something similar helps with nerve pain.

posted 4 days ago
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Eye lash extensions

Eye lash extensions

This is an odd question. But has anyone else had serve reactions to eyelash extensions? I got mine done before. They were fine. I have had them three different times through the years. Recently my lupus at its worst I had a severe reaction to them. I'm not sure if its related but thinks its really weird why all the sudden it almost kills me. It starts with an itch in the throat an hours after getting them. Then I keep coughing until my lungs are almost closed off and I have to use an inhaler… read more

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A MyLupusTeam Member said:

Awesomefatkitty- I was thinking it was the pregnancy too before I never had issues. I went to three different people and had three reactions the same.… read more

posted 4 days ago
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walking up and down stairs

walking up and down stairs

I was diagnosed with SLE in September..we bought our house in October..since then it has been extremely difficult for me to climb up the stairs..I am often forced to sleep downstairs due to the excruciating pain in my hips..does anyone else have this issue?

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A MyLupusTeam Member said:

Yes, I have trouble constantly with it. My hips, knees ,and feet

posted 6 days ago
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I had to inject tinzaparin with my first pregnancy

I had to inject tinzaparin with my first pregnancy

I'm curious as to whether anyone else has had the same type of injection and if you had to continue to use them for a second pregnancy. My partner and I have been discussing another baby but I'd like to be prepared I hated doing the injections the first time. I had to use them all through and for 6 weeks after anyone had any experiences they'd like to share please

Thank you xx

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A MyLupusTeam Member said:

posted 5 days ago
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