Because of needing immume suppressed we cant really have immunity boosters and im trying to stave off a cold. Ive been told that gargling vinegar? Maybe some zinc? I definitely know about honey? Honey and tea?
What do you guys think about that? I mean I wouldn’t wanna wish this on anyone! But my thougth was if she has it anyway? Then I hope she talks about it all the time and really documents every last bit of it to the entire world. So that more ppl out there can understand what rough, painful and really exhausting lives we really live. And exactly how difficult it’s for us Lupies to live with it.
I’m tired of being miserable and have had several people including drs recommend CBD or medical card. Does anyone do this and does it help?
Does anyone get non painful nerve zaps in their body? I get a zapping feeling but it isn’t painful in random spots on my body. Mostly my nose and lips. I also get these weird crawling sensations in my scalp, on my face, and weirdly enough, one of my knees, daily. It happens on my face more than anywhere else. I’ve had an MRI of my brain to rule out anything like MS and that came back clear. I’m just wondering if lupus isn’t attacking my nervous system. I had an appointment scheduled with a… read more
Does anyone have severe burning, itching & pain in feet? Especially at night? The only thing that seems to help is ice cold water & neurontin. Also, have been having a lot of swelling in feet, but may be from prednisone.
Does anyone’s ears hurt? When I flair my ears hurt so badly. And I get knots in my jaw joints. Under my skin all around my ears and jaw hurt so bad especially when pressed on. Wondering if anyone else has this issue. I suffered from a lot of ear infections as a kid. I’m wondering if this is why.
I have lupus, RA, and Sjögren’s. I am currently taking Neurontin 100mg twice a day as needed and 300mg at night. I also take 10mg of Baclofen at night. I take so much Ibuprofen I am honestly surprised I don’t have a hole in my stomach. I have tried to tell my rheumatologist about the pain but he says the only thing that will take care of the pain is steroids so he just gives me another round of it. It takes the edge off but I don’t ever get any true relief. My PC doesn’t want to… read more
I feel sharp one day .then cant remember things the next. My memory from day to day seems shaky and I forget where I put things and feel like I have to start all over at times.Is this a Lupus issue?
I have Lupus, myositis, and back disease along with other non Lupus issues.Everyday I fight the pain. I start with Tylenol and Motrin in the morning, but by afternoon, I give in and take pain medicine, Vicodin. I feel guilty taking these pills because of the Opiod Epidemic. I take as little as possible to manage my pain and never take them to get high. I am interested to know if others use these meds.
I have complained about this issue for several years and no one really addresses it. At first taking lysine helped and the sores and pain were infrequent. But now the pain will wake me up at night. I feel like I'm going crazy that I'm having a tongue issue and no answers. I have started to use Peroxyl and that helps some what with the pain issue at night. This past week has been miserable and has been making it hard to eat.
I did have… read more